Good morning, Sandra!
I think you just described my typical night. Just add a baby who has a cold into the mix!! LOL
The fact that we look pretty normal on the outside, makes it so hard for them to understand. I love the "spoons theory", my hubby and I actually use that to gauge where I am at at a given time.
Lupus keeps you on your toes, always changing, so you have to change with it.
Praying for understanding family and friends for you,
"You do not have a soul. You are a soul. You have a body." C.S. Lewis