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Thread: do you feel this way

  1. #1
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    Default do you feel this way

    I lay in the bed day after day.
    I lay in the bed night after night.
    I try to walk around the house, only my legs don't work.
    I try to to turn the tv on only my hands don't work.

    I take medicne for this, I take medicne for that.
    Nothing seems to work. I fight just to live, and for what?
    Another day of pain, another day of medicne.

    Swelled feet, swelled hands, nothing to eat, no sleep.
    Living the life of the walking dead. Dragging around like a
    mummy, no help in site.

    I lay in the bed day after day.
    I lay in the bed night after night.
    I take medicne for this, I take medicne for that.
    Does it ever end. Does it ever stop.

    I see no end in sight, I see no releif. The pain, the discomfort.
    My skin turns blue,my skin turns red, the cold kills me, people call me smurf and some days I even have spots. Hmmm Lepord now thats a nice look, I think not.

    Just when you think you have had it all, something else comes your way. You fight back depression, You fight back with all your might.You want to scream but what good will that do.The doctors listen but they all say the same, sorry there's nothing more we can do.

    Take a medicne for this and take a medicne for that.
    Don't eat this and don't eat that. Don't do this and don't do that.
    Stay out of the light , go out at night. what the hell???

    You cry, cry, cry but does anyone understand? Does anyone feel the pain?,
    do they know the discomfort. No they dont, they all call you crazy! Look at you like you are insane! I don't have something that you can catch, don't try to lock me away for a I am not an animal. Try to help me and try to understand.

    I aly in the bed day after day, night after night, taking medicne for this and taking medicne for that,And what the hell is all for???? just another day of a pain here and pain there.

    just another ramblings for the book of me Life in Hell...
    Lea
    SLE Lupus diagnosed 8/8/11
    COPD,Raynauda's, IBS, Asthma, Sleep Apena, Amenia and Arthritis,Diabetes,Reflux TMJ, temporal arteritis
    Half dead, cripple and crazy but still above ground.
    Medication
    Novolog injections, Medrol injections, MTX injections, Dicyclomine, Plaqulin, Iron, Spreva inhaler, Advair inhaler, Albuteral inhaler, Fish Oil, Calcium, Diclofenac, Citalopram and doxcycline

  2. #2
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    Default

    you said it all, lea.

    these are very sad words but unfortunately they are true words...

    i hope your day gets better.
    Phyllis

    share a smile today

  3. #3
    Join Date
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    Default hi

    Sending you gentle hugs to a strong member of WHL who is going through many symptoms we all feel daily.You hang in there,you have come so far already.One day i hope some of these symptoms get treated and ease if only a little,enough for you to feel a little happier n pain free.
    Most recently Rob who has suffered lately had 1 day of normality.He never thought that day would come....it did.So hold on,your time will come.

    Love n thinking of you
    Amanda.xxxxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  4. #4
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    Thumbs up Do you feel this way

    I feel you on this, but don't give up. I don't know what you believe, but God will help you through this. I know because without God, I would have committed suicide already. I am not going to preach the Bible to you, but please believe that better days are ahead. You have a beautiful poetic gift. Write some more poetry. It may not be pretty, but it's poetry - Real life.
    "If you change the way you look at things, the things you look at change" (Wayne Dyer)

  5. #5
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    Default

    So true, so real, for most of us. I also hope, that things will get better for you, hang in there, we are hanging with you.

    Debbie

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