Hi Maine, welcome!
Originally Posted by maine
Reading your post made some connections spark for me. I have not be diagnosed with Lupus yet either but I have been diagnosd with IBS, Lactose Intolerance, Spastic Colon, Diabetes, Reynaud's, Sarcoidosis and likely CTD. I also had 2 previous doctors tell me I have Mitro-Valve Prolapse (ECCO & Cardiologist said no this year to that & no other dr ever has heard it) and Rheumatoid Arthritis or Psoriatic Arthritis (she wasn't sure which but thought it likely it was one of the two). Oh yeah, I also have Psoriasis. (Sometimes I even forget all my "labels" ).
I never made the connection with Strep before, but it makes sense to me too. When I was younger, there was a period of about 5 years from 13-18 that I had strep every year two or three times a year. That PCP was at a point with me where if I had it one more time, he wanted to remove my tonsils because he said the strep was giving me tonsilitis. Luckily, that didn't happen and when I went to college I seemed to switch from annual Strep to annual bronchitis.
I had a doctor who thought I had Lupus 4 or 5 years ago when I kept getting sick one thing after another (Uticaria, Pityriasis Rosacea, Shingles, Chronic Sinusitis, Hay Fever) for about 6 months but he dismissed that when the blood did not support the diagnosis. I didn't know anything about Lupus at the time or I probably wouldn't have let him drop it that easily.
Since then, my common symptoms are all over random rashes as well as a mylar rash, joint pain/swelling, fatigue, insomnia, light sensativity, temperature sensativity. On a good day, I only deal with 1 or 2 of them.
With all the things I deal with, I am lucky to say that I am completely med free and keep pretty well controlled by watching my diet and stress. I also am lucky in that my flares seem to spread far apart. It seems like I am really healthy for a year or two and then really sick for six months to a year.
I am so thankful to have found this site. Everyone here is compassionate and understanding. Here I feel like I BELONG and am UNDERSTOOD. I am glad you have found us and are no longer feeling alone.
As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.
I would love to see research on this