I am rather conflicted about the "Don't search the internet" bit. On the one hand, I can understand why our doctors tell us that, because we invariably read something that @#!& out of us! But, on the other hand, it is very important that we educate ourselves so that we can make informed decisions, with our doctors, about our health care. So, it is certainly a catch 22....
I know the limbo of not having a definitive diagnosis can be maddening and there are quite a few members here who are dealing with a diagnosis of Undifferentiated Connective Tissue Disorder. So, you are not alone. Just know that we are here to help you as much as we can and know that we understand what you are going through.
Peace and Blessings
Look For The Good and Praise It!