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Thread: Brain Fogs

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    Default Brain Fogs

    Oaky! I know we all get brain fogs but I'm really starting to have severe issues with mine and I have not yet been diagnosed with Lupus just Sjgorgens. What worries me is that my last blood test I had elevated CK levels, and that means there could be an indication of brain issues. My Rheumy has not decided to give me a CTScan or MRI yet (says I don't need the radiation). My concern is I am really getting bad. The other day at work I was doing a training class and in mid sentence I forgot the word "signature", I actually had to do the hand motion and someone guessed what I was saying, and I made a joke and we went on, but it has been happening a lot lately (eventually I'm not going to be able to joke about). And my grammar and spelling are horrific (you wouldn't think I have a J.D) Today I made up another word "glossieded" What the heck does that mean Only good thing going for me is I present it with confidence and people let it go I also have been getting fuzzy headaches (that's what I call the headaches that aren't as much pain as the feeling of having air blown in your head making you feel fuzzy). I'm actually starting to get concerned if there could be brain issues. I do have sleep apnea but it is really mild my CPAP pressure is only 6 lowest possible is 4, and I'm on Provigil so I don't think they should continue to think it's the apnea.
    Spanglishqueen AKA Brenda or "B"

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    I am right there with you...I absolutely must have full nights sleep or the next day it is like I am on drugs!! I also have found that right before a flare I have bad anxiety and during the flare I get the fog. I just told my doctor, normally I can multitask about 6 things...now only 2 if I am lucky. I too have that feeling of dread and fear of holy ***t what is going on? My spelling is horrible too...thank God for spell check, unfortunately it does not help when the words won't come out of the mouth when I need to speak!! If my daughters tell me one more time ...'I told you that'..I am going to scream...the memory is terrrible.I think they don't want to see it...ages 11 and 22.
    Andrea

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    I am so sorry you are having these issues. I understand and have them pretty bad myself. It is tough to function during the day and it even gets a little embarrassing on my end but you are right, if you go at it with confidence people will forgive and forget the silliness we have when it comes to our brain fog

    The worst is forgetting words when you are talking.......this happens to me and it is very hard. I am an accountant and there are times it has affected my ability to even do my simple bookkeeping jobs. Lately I have been putting things in weird places. I have put the milk in the cupboard and ice in the fridge......it goes on and on!!!!!!!!!! Tim is great with it and most of the time he helps me laugh at all of it. Still, it is very hard. My brain fog has affected my balance and at times I will just fall over. I think Gumbi takes over my body during those episodes

    I have a couple of questions for you.......how are you sleeping at night??????? You said you get dizzy headaches, have they looked into vertigo???????? I also don't understand that if you are having an increase in these symptoms and you lab work shows something, why won't they give you and MRI???????

    I really think they need to look at your brain. They probably won't find anything and they will just put it in your file as another symptom but, for peace of mind, they need to just look. It will make you feel better and you never know, maybe a little change in medication can help. Remember, you are your only advocate when it comes to managing your disease and if you want them to look into this more, call them and get in soon and push it until they don't have another choice.

    Just hang in there love and remember, we are all here for you and we will help you get through this. I am sending you healing thoughts and gentle hugs to get you through the night
    As I grow to understand life less and less,
    I learn to love it more and more.

    Age 29, Lupus for last 7 years

    Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram

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    Quote Originally Posted by pandagirl View Post
    I think they don't want to see it...ages 11 and 22.
    Alright this is how bad it's getting. I actually read this and said to myself wow she's 22 and has an 11 year old Lord Help Me. LOL!
    Spanglishqueen AKA Brenda or "B"

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    Thanks Danica! I have a Rheumy visit at the end of the month. And I sleep great during the night I don't wake up a lot and I sleep solid. Now due to the Provigil the Day Time sleepiness is gone. Actually I know why they haven't tested me is because soo many things were wrong at the same time. Sleep apnea, IBS, Sgjorgens, Lupus-like syndrome. They needed to wait for the treatment on most work itself out before doing too many tests. I know just as the symptoms pile up I get worried. I will push for the tests. Tho.
    Panda I actually notice I feel worse and am more foggy when I am anxious. Working on that too.

    Thanks all
    Spanglishqueen AKA Brenda or "B"

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    Brenda...very funny!! No ...the kids are 11 and 22...(one husband.hahah) but I do write things sometimes even I am confused when I look back and read it !!!lol Some days I feel like I am 86..not 46.
    Andrea

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    This happens to me too. Sometimes, I feel like I'm 90 rather than 19

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    Before I joined this forum I thought I was going crazy because I would forget stuff or even think I read certain things. Its good to know that Im not alone and it just lupus playing tricks on me.... I f thT MAKES ANY SENSE TO ANYONE.


    chriss
    Live, love, and most importantly be grateful!!

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    Haha, oh Scarby, I can relate to that. I frequently make jokes about how I'm secretly an 83-year-old woman. My friends bought me a cane for my 18th birthday xD.

    Curse that brain fog! It needs to stop happening. Mines been brutal lately. Just yesterday I unpacked groceries into the microwave instead of the cupboard.
    My grandma was really confused when she opened the microwave a while later.
    Medications: CellCept, Plaquenil, Prednisone, Naproxen, Tramacet

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    That's funny ! Yup they sneak up on us at any time. Yesterday I was at a good friends house they were having a Pig fest (anything pork and edible they had it). I was in front of my friend telling a story about something I said to him earlier and I forgot his name. I was a 'lil embarrassed because it was obvious I was lost for words. But I recovered nonetheless Thank goodness I'm cute LOL!
    Spanglishqueen AKA Brenda or "B"

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