Page 1 of 2 12 LastLast
Results 1 to 10 of 16

Thread: Dr's visit today- Rituxan working!

  1. #1
    Join Date
    Jun 2006
    Location
    Virginia
    Posts
    509
    Thanks
    0
    Thanked 15 Times in 11 Posts

    Talking Dr's visit today- Rituxan working!

    Hello everyone! Well I went to the doctor's today and it shows that the Rituxan is working!
    My random urine for Protein went from 213 last week to 73 this week! They are also measuring my CD19 and CD 20 counts (specific lymphocyte markers which the Rituxan is targeting) and my CD 19 before treatment was at 48 % and CD 20 was 0%. After the treatment CD 19 is 0% and CD 20 0%! 0% is what they want! They will give the treatment 6-8 weeks to work and they if my CD 19/20 counts are starting to climb again then I may get another treatment. Less is more right now to decrease side effects!

    I also actually lost 9 lbs of fluid in one week! Thank goodness. My SOB the last couple of days has gotten better and they were able to decrease the lasix! Also my prednisone was lowered from 40mg a day to 20mg a day for the next couple weeks until I see my doc again!

    Finally some good news! Also, they got the complete final report back on my kidney biopsy and the nephritis is active but it was caught soon enough that the scarring/damage has not advanced any further then from my previous nephritis flare/biopsy results! So yeah!

    I still have the swelling but in time is should continue to get better! Just an annoyance and a long road!
    Diagnosed in 1990 at age 11.
    Trust in the Lord with all of your heart!

  2. #2
    Join Date
    Dec 2008
    Location
    Atlanta
    Posts
    3,115
    Blog Entries
    1
    Thanks
    27
    Thanked 80 Times in 69 Posts

    Default

    wow butterfly rn,

    you have just made my day....what incredible news you got today...you should put a star on your calendar for today.

    congratulations...you have fought so hard and for so long, and finally, something is going right.

    thank you so much for sharing this good news with us....i hope you have peaceful sleep tonight.
    Phyllis

    share a smile today

  3. #3
    Join Date
    Apr 2009
    Posts
    838
    Blog Entries
    5
    Thanks
    8
    Thanked 24 Times in 22 Posts

    Default

    Woo hoo! Let's celebrate!



    Wow, that's a lot of good news, Butterfly!

    I will keep your recovery in my prayers, sweetie. (((((Hugs)))))

  4. #4
    Join Date
    Jun 2006
    Location
    Virginia
    Posts
    509
    Thanks
    0
    Thanked 15 Times in 11 Posts

    Default

    Thank you mountaindreamer and abbasgirl! It was great news to hear finally! Now I just need to get this swelling in my left leg to stop because it's becoming painful at times....especially today!
    Diagnosed in 1990 at age 11.
    Trust in the Lord with all of your heart!

  5. #5
    Join Date
    Jul 2009
    Posts
    37
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default glad it's working!

    This is awesome! So happy for you!

    happy dancehappy dance!

  6. #6
    Join Date
    Dec 2008
    Location
    UK
    Posts
    3,091
    Blog Entries
    59
    Thanks
    0
    Thanked 94 Times in 83 Posts

    Default hi

    Oh what fab news!! So happy for you and glad to hear good news.Yipeeeeeeeeeeeeeeeeeeee!!

    Love Amanda.xxxxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  7. #7
    Join Date
    Jun 2006
    Location
    Virginia
    Posts
    509
    Thanks
    0
    Thanked 15 Times in 11 Posts

    Default

    Ok so now that I started to have good news I find out today that I have 3 blood clots in my left leg. It started yesterday I had so much pain and pressure in my leg and walking from yesterday and now today has become so painful. Called the doc, they did a doppler and there they were. i have one in calf, behinde my knee and on the side of my thigh! Great right...so now I am on coumadin and lovenox injections for the next few days. I tell ya I can't win for losing! I'll be happy when this pressure just lets up...it's uncomfortable! Ugg!
    Diagnosed in 1990 at age 11.
    Trust in the Lord with all of your heart!

  8. #8
    Join Date
    Apr 2009
    Posts
    838
    Blog Entries
    5
    Thanks
    8
    Thanked 24 Times in 22 Posts

    Default

    Oh Butterfly...(((((((Hugs))))). Drat!

    I'm praying about it specifically sweetie. Please keep us posted.

  9. #9
    Join Date
    Dec 2008
    Location
    Atlanta
    Posts
    3,115
    Blog Entries
    1
    Thanks
    27
    Thanked 80 Times in 69 Posts

    Default

    oh, butterfly,

    i am so sorry. I had to take the lovenox injections....they really suck. Did your dr. tell you to always rotate the injection spot? Also, do you know to expect bruising? I am sure you already knew these, but i just wanted to make sure.

    I am so glad that you called your dr.....just another example of us postponing getting medical attention because we are afraid it is just another lupus thing, and it is just going to cost us money and time to be told this.

    I hope your swelling is going down, and that your pain is giving you a break.
    Phyllis

    share a smile today

  10. #10
    Join Date
    Jun 2009
    Location
    Detroit, Michigan... born and raised
    Posts
    293
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    This is awesome news Butterflyrn Im so happy for you Im actually dancing , lol
    Continue to get well and Ill keep u in my prayers

    Chriss
    Live, love, and most importantly be grateful!!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •