Results 1 to 10 of 10

Thread: Which Doctor do you Call?

  1. #1
    Join Date
    Aug 2009
    Location
    Northern, VA USA
    Posts
    9
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Which Doctor do you Call?

    Thanks for the perspective Jana.

    I am in the throes of a big flare. I tried to go to work today and didn't last long. I have slept 14 of the last 24 hours and I am still exhausted. I am experiencing joint pain like I have never experienced before. I was barely able to concentrate enough to drive home this afternoon.

    I was only recently diagnosed. Oddly (or maybe not) by my dermatologist with support from a PA in my general practitioners office and an initial visit to a rhumetologist. So here is my question-who do you call when you feel like this? My dermatologist prescribed the Plaquenil; she doesn't communicate well with my PA, who is my primary medical professional. I am at a loss and to be honest, not thinking clearly.

    I am only on Plaquenil. Today I have taken a fair amount of Tylenol (I am allergic to motrin and nsaids)

  2. #2
    Join Date
    Jul 2009
    Location
    South Carolina
    Posts
    277
    Blog Entries
    1
    Thanks
    29
    Thanked 24 Times in 15 Posts

    Default

    hello,

    I have spent many years going to the dr and dealing with my illness... Have had many times when I needed to call about issues... which one to call... since you seem to be having lupus flares I would call the ruemy dr... I think he can be more help to you... even if you have had very few appointments with them...

    If that doesn't work you can always call one of the other ones... Or maybe you can start with the one you feel more comfortable with that always helps with me...

    just a thought
    hope it gets better... keep us posted
    Lea
    SLE Lupus diagnosed 8/8/11
    COPD,Raynauda's, IBS, Asthma, Sleep Apena, Amenia and Arthritis,Diabetes,Reflux TMJ, temporal arteritis
    Half dead, cripple and crazy but still above ground.
    Medication
    Novolog injections, Medrol injections, MTX injections, Dicyclomine, Plaqulin, Iron, Spreva inhaler, Advair inhaler, Albuteral inhaler, Fish Oil, Calcium, Diclofenac, Citalopram and doxcycline

  3. #3
    Join Date
    Dec 2008
    Location
    UK
    Posts
    3,091
    Blog Entries
    59
    Thanks
    0
    Thanked 94 Times in 83 Posts

    Default hi

    Oh i so understand you.I on many occasions have sat here and in pain thinking.....do i call my GP or Rheumi or maxofacial or dentist. I too never know for sure.Then i usually go for the GP.
    I know you said your dont have much communication,but the GP should receive follow up letters of most of your appointments,or thats what happens here in the uk.
    Hope you rest and begin to feel a little easier,the pain gets easier.Try calling your GP its a start.But dont just leave it.You need help and now.If the GP is the wrong person they should advise your who to call.Please know i care and i hope you make the call.

    Love Amanda.xxxxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  4. #4
    rob is offline Super Moderator Super ModeratorEmperor of the World
    Join Date
    Feb 2008
    Posts
    3,681
    Thanks
    426
    Thanked 1,105 Times in 628 Posts

    Default

    When in need, I call the Dr./specialist who I get along with the best, and who I have the most confidence in. I have an awesome G.P., so he's first on the list, and I have a really good neurologist, so he's second on the list. Sometimes I talk to he neuro about non-neurology stuff, and he's always willing to help and give good advice.

  5. #5
    Join Date
    Dec 2008
    Location
    Atlanta
    Posts
    3,115
    Blog Entries
    1
    Thanks
    27
    Thanked 80 Times in 69 Posts

    Default

    hi elleinod,

    this is such a good question, and i am glad that you started this thread.

    i agree with rod about calling the dr. that you have the most confidence in. However, i also wonder if you should call the rheumatologist, because there are ways that they can help with a bad flare. My rheumy has given me medrol (steroid) injections that have immediately taken me out of the flare....i am not sure if my g.p. would have done this. If your dr. can't see you right away, ask to see their nurse practitioner or physician's assistant. I can usually get in to see one of them in a day or so.


    hope you find some relief very soon.
    Phyllis

    share a smile today

  6. #6
    Join Date
    Jul 2009
    Location
    VA
    Posts
    53
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi,

    I would call the Rhuematologist because they are informed about flares like mtdreamer said..however if its something like acne...i will go to a dermatologist. I also agree with Rob...go with someone who u trust and feel comfortable with. I think if you do have an immune depressn disease u should find a good Rhuematologist that u do feel comfortable with and I find that they can pretty much write u a prescription for what u need....

    I hardly ever go to my Primary care physican because they dont have copies of my records from my rhuematologist...and i am too lazy to give the history and it would take tooo long LOL.

    Hope that helps!

    neL

  7. #7
    Join Date
    Jun 2006
    Location
    Virginia
    Posts
    509
    Thanks
    0
    Thanked 15 Times in 11 Posts

    Default

    I generally stick with my rheum if it's related to the lupus!
    Diagnosed in 1990 at age 11.
    Trust in the Lord with all of your heart!

  8. #8
    Join Date
    Aug 2009
    Location
    Northern, VA USA
    Posts
    9
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Thanks everyone. That really helped. I called rheumatologist and then the GP.

    I am just getting underway with a rheumatologist--and when I called, I learned the first appointment I could get with her is in two weeks. This will only be my second time seeing her.

    I went to see my GP and she very very nicely told me she doesn't feel comfortable prescribing anything because I have been seeing specialists for it. The thing is, I gave my GP a phonebook-thick copy of my medical records when I started seeing her about a year and a half ago. She seems to be worried about stepping on toes while I sit in exhausted, achey heap in front of her.

    Here is my plan (I feel better when I have one): I am going to deal with this flare and just rest as much as possible. Six months ago, I didn't know I could do something about feeling this way, now that I do, what is another few weeks? Positive thinking! When I do meet with the Rheumatologist I will start forming a better relationship with her and hopefully, we can get this undercontrol.

    Have I mentioned how much I hate having Lupus?

  9. #9
    Join Date
    Dec 2008
    Location
    UK
    Posts
    3,091
    Blog Entries
    59
    Thanks
    0
    Thanked 94 Times in 83 Posts

    Default hi

    I am so glad yo read you made the call.I know its a very slow process,but you have us all here and i hope you come here often to see how we all gather round and help each other through the tough times.
    I saw my rheumi yesterday,was'nt very productive i came away with nothing really.So be prepared that even though yet get your appointment it may not be sucessful straight away.BUT remember also,on this forum you will also find very sucessful stories,where appointments go right first time,meds are given diagnosis too.So as long as you know and are prepared you can get through anything.
    Oh ive got many experiences.But i see the rheumi again in 4 weeks, so maybe then he will be a little more helpful.If not,because of the brave and strong who i call my friends here, they will advice me where n what to do.
    Soo glad you made the call.

    Hope today is an easier day,but if not just you rest and know we understand.

    Love Amanda.xxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  10. #10
    Join Date
    May 2009
    Location
    Georgia
    Posts
    167
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    I'm lucky...I can always call my rheumy. He is in touch with every other doctor I see...lets them know what is up with me, and demands that they do the same in return...so I'm never having to explain to another doc what my SLE treatment entails.
    Blessings,
    Carrie


    "I feel like I'm diagonally parked in a parallel universe."

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •