Another Step Back
Just got back from the allergist today who confirmed cold-induced urticaria (hives) which he believes is caused by the lupus. I now have to carry an Epi-pen with me at all times because I swell up quickly after exposure to any kind of cold temperatures and he's afraid if it spikes my throat will close up. This is so ironic because of all the ways a person could die, suffocation is the one that freaks me out the most. Compared with what some others deal with I guess this isn't too horrible, but it's just one thing after another, all going in the wrong direction. I'm already at my limit with meds and the rheumy is talking about dropping my Imuran because he doesn't want me at 200 mg. long term. Now I'm wondering how he's supposed to slow the progression if new things are cropping up even at this high dose. Bummer.
SLE, SJS, vasculitic neuropathy, Degenerative Disc Disease, Chronic Autoimmune Urticaria