Results 1 to 5 of 5

Thread: new to this glad I found someone to talk to

  1. #1
    Join Date
    Aug 2005
    Location
    Moore Oklahoma
    Posts
    2
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default new to this glad I found someone to talk to

    HI I am Nonnie I have been diagnosed with SLE and RA for about
    a year I am still just as sick as I was a year ago I have ALOT of pain in
    joints and muscles and have had some problems with siezures
    I have had to quit my job I know that I have great docs but I am feeling
    like a hypochondriac since none of my friends or family have even heard of this ilness.
    I feel like I am coping pretty good but I sure am glad that I found this site so that someone will understand what in the world I am talking about.

    Nonnie
    I was diagnosed with SLE and RA about a year
    ago I still feel like I am in the dark and nobody
    knows what I am talking about .
    I really need some input from others in my
    same situation

  2. #2
    Join Date
    Jul 2005
    Location
    Iowa
    Posts
    143
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Welcome Nonnie. I think you will find this site to be helpful to you. I have been sick for almost 2 years and although I have had some good days here and there, my disease keeps progressing and I often feel very sick. I know what you mean about others not understanding this disease. There is a great wesite: www.butyoudontlooksick.com and the author has a great way of explaining lupus to people who don't understand what it is like. Read the author's Spoon Theory. I have copied it and have given it to my family and friends so they can better understand what I am going through.

    Take care of yourself and I hope you can get some relief soon.

  3. #3
    Join Date
    Aug 2005
    Location
    Moore Oklahoma
    Posts
    2
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Thank you so much for the welcome and the link
    I am sure that this will be a big help to me also.
    I really think it helps just to have someone to talk to.


    Nonnie
    I was diagnosed with SLE and RA about a year
    ago I still feel like I am in the dark and nobody
    knows what I am talking about .
    I really need some input from others in my
    same situation

  4. #4
    Join Date
    Aug 2005
    Location
    UK
    Posts
    9
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    hello just wanted to welcome you to the site...i am new too x x

  5. #5
    Join Date
    Oct 2004
    Location
    Illinois
    Posts
    955
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi Nonnie, welcome!

    The spoon theory is great - I recommend it to everyone as well!

    www.lupus.org is also a great site - it tells a lot, and you can learn a lot there. This site is great, as are others like it. Having others who understand what the heck you're talking about and who can really relate is so wonderful!

    work with your doc about the pain. if you're not happy with the various pain killers, consider some alternative therapies - with your doc's approval of course! I take a teaspoon of turmeric plus 2 tablespoons of ground flax seed every day. Also fish oil. All work well to reduce inflamation - and inflamation equals pain. It has worked well for me, I also get a theraputic massage regularly.

    I hope you'll join in often. We're all in this together!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •