Welcome to our family! You have come to right place. You have come to a place full of unconditional love and support. You will read so many stories like your own and you will realize that these things are not just happening to you and this will allow you to feel a little less lonely.
It is actually proven that some women with Lupus respond very well to Lupus. Some women even go into remission during this time......I think it has something to do with the hormones. I am happy this happened to you and you were able to have a pretty good pregnancy.
I agree, start keeping a daily journal of your symptoms, how you sleep and even what you are eating. I will go into the doctors office with a huge list of questions in my head and it never fails.....I always forget things! Now I write down questions as I think about them and then take the list to the doctor and I can actually check them off as I receive the answers. I also ask Tim if he has any questions for the doctor because I know our loved ones are affected by our disease and it is good for them to get some answers too. Another thing is to take a pad of paper and a pen into the room with you....you can write down what the doctor says and this way you can go home and think about it all. They always pass on so much information that I just feel overwhelmed and then when I get home I forget what he has said. You also take in a recorder to record what he is saying. These are just a few ideas. Some may work for you and some may not. Find what is comfy for you and just keep that up.
Good luck with the doctor and please keep us posted on how it all goes and the answers you get! I am sending you peaceful thoughts and lots of gentle hugs
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram