I'm so sorry your having a rough time with this, but I've learned since my diagnosis staying calm is a really good thing to do on a daily basis. When I was first diagnosed I used to freak out easy any little thing that I would feel or hear would put me into a vortex of emotions. But now that I"ve had it for a bit I'm doing better. I've learned that staying calm is the best thing because stress can cause a flare up and your trying to reduce that now. My advice would be to talk to your doc about meds i'm on prednsoine which is a cortical-steriod and that's a fancy word for anti-inflamitory. As for going to the ER that really depends on you, you know how you feel on a daily basis, I usually look for red flags in my symptoms before treking off to the ER,
like changes in my urine, or bowel movements,
Increased pain (other then my ordinary pain)
really bad chest pain and or shortness of breath
ect... and really only you truly know your body so when you feel like it's just to much then you go to the ER.
I know being diagnosed is hard especially after having the run around for four years, but hang in there it really does get better and who knows maybe they'll come out with a cure and we'll all beat this!!!!!!!
hang in there and stay positive!
Lots of hugs!!!!!! Stefanie