I am with you and Rob, I also seem to have a pattern of not feeling better. Some lucky ones end up in remission but I have not made it to that point......I am hoping to get there someday! I also get mouth sores pretty bad. I have been using miracle mouth wash. The doctor prescribes that for me and it really helps with eating and just doing things like brushing my teeth. I even get sores on my head.....yuck! I am just sorry you are feeling this way and I hope you feel better soon! Please let us know about the blood tests and the results. I will be sending you healing thoughts and lots of soft hugs
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram