Welcome to our little corner of the world. It's a warm and cozy place to hang your head or to help hold up the head of someone else. As you have already seen, it is a place of compassion and understanding.
IMHO, one of the most important aspects of your health is your mental approach to this battle. We truly understand the exhaustion, the frustration, the pain. We also understand feeling much worse than we look. You are free to vent here anytime...we all do! Hopefully, the more time you spend here, the more empowered you will feel in terms of fighting this beast, so that you may be as healthy as you can be, every day. There are some truly inspiring stories here, as well as knowledge, information, and friendship to be gained.
Give the meds some time to work. Learn as much as you can about this disease. Knowledge is the most powerful sword you have in this battle. Be informed about your illness and decide, here and now, to take charge of your health and well-being. Treat your doctor as your team-member. If you don't like the level of care you are receiving, if you cannot communicate, if your doctor doesn't listen to you, kick him or her off the team and find someone who is focused on your wellness.
We are here for you. Hang in there. You and your husband will get through this. You will learn to manage this beast to the best of your ability, and when you do, you will not only be helping yourself, but you will also help him. He is stressed because he loves you. It is difficult for spouses and children. But you will adapt. The sun will rise tomorrow, and you will fight another day. We'll be right there with you.
Wishing you wellness,
Life is measured not by the breaths we take, but by the moments that take our breath away.