two years of searching for "what is wrong with your body" is a very frightening period of time. Lupus is so very individualized, and some people get immediate diagnosis, and then some people spend years searching before the diagnosis is made. It took over 10 years for my diagnosis, so i know what you are going through.
I was first diagnosed with fibromyalgia in 1996. Even though my ANA was positive and maintined a 1:1280 count, the symptoms did not manifest themselves for a diagnosis until October 2008.
I am sorry to hear that your dr. has taken you off plaquenil....this med helps so many people by reducing their symptoms. I take plaqnenil and methotrexate.
Your list of symptoms certainly sound like lupus, but they could also be indicative of other auto immune diseases....hopefully your dr. will be able to narrow down the possibilities, and make a clear diagnonsis. Have you also been tested for fibromyalgia (fms)? a lot of my small muscle pains (like what you are experiencing on the top of your feet) is related to the fms. There are some medications that can help with fms....it is common for fms to go along with lupus.
I am not the best person to explain the blood work results, but as i understand it, the 1:140 is a ratio measurement, so the lower the second number, indicates a larger number of antibodies to each count of blood. I know this is not a good explanation, and i know others will be along who can do a better job. Also, there have been several threads discussing these measurements, and you will find valuable information in these. Also, if you will look at the "stickys" at the beginning of each section, you will find even more information.
know that we are here, whenever you have any questions. I am sorry that you are dealing with this frustration and pain, but i am glad you found us....this is truly a caring and knowledgeable group of members from around the world.
best of luck to you, and we welcome you to our "family of the sky"