I am so happy you are talking to us and trying to reach out to others that know what you are going through. Everyone is right.....this will pass and will sneak up on you every now and then but it really does get easier. As for your family, they love you and if it is meant to be they will hold your hand through this battle and help you fight every step of the way. Just remember to keep communicating with them about everything. Once you stop communicating, it all bubbles up and is not good for you, your stress level or your Lupus. Give them a chance, you may be surprised
Oluwa is right keep stretching. Your body may not be able to handle a hard workout and that is ok! There are other things you can do to keep moving. I have started doing yoga. It is very relaxing but at the same time really focuses on stretching and using our muscles so they do not wither away to nothing. On good days I will do pilates. This is a bit more in the stretching department but this will help you keep the shape of your muscles. On the really hard days try to get in the water. Water therapy is great for Lupus patients. It feels like everything is lighter in the water and we are able to move more and still work out our muscles. There are so many alternatives that can help you......just do not loose faith in yourself or your own body.
Make sure you are getting lots of sleep. I have to use a sleep aid but it is worth it! When I do not sleep I start this vicious cycle of feeling like poo!!!!!! Sleep is the key fighting ingredient against our disease. Rest during lunch if you can and you can always try going in a bit earlier and leaving earlier in the day when you start to get really tired. You never know unless you try.
I love Colorado and I hope you have an amazing time!!!!! I have been wanting to move there for some time and I may actually see it happen sooner than later! Enjoy every minute with your family. Enjoy the cooler temps and protect yourself from the sun......sounds like you have a good plan where that is concerned
Just remember, we are all here for you! You never have to apologize for feeling down. We will be here for the good times and the bad times and will always listen and offer some encouraging words and advise when needed. You always have someone and we all know what you are going through. Please hang in there and remember, this to shall pass!!!! I am thinking of you and sending you encouraging thoughts and gentle hugs and again, welcome to our family
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram