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Thread: Let down...Big time....No point anymore

  1. #1
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    Default Let down...Big time....No point anymore

    Hiya guys,

    Went to my rhuemy appointment today, it was the worst appointment ive ever been to, once again not seen by the organ grinder....i was seen byt the monkey!

    I told them about my back problems, how ive had to go to A&E and my drs to help me, he said he is going to send me for an MRI after seeing the results of the Xrays, he still insists this is not lupus related, (the pain came out when i was diagnosesd).......1st whatever!

    I told him all the symptoms come back, im sleeping thru the day again! feeling sick all the time joints aching no memory, (but wernt today or swollen, so apparantly im fine!) he asked me if i was working, i said What? are you serious? i dont have a life anymore because of the pain im in, i cant even get up to do my housework let alone get up for work........2nd Whatever!

    He even yawned whilst i was talking to him!!

    I told him what was the point of me taking mtx when im not reaping any benefits from it, he said he would put it up.......BUT DINT!

    He then got ready to send me on my way, till i said HANG ON....any chance i can have the predisolone back? he said NO theres no point taking long term predisolone is not good for me, and from the last time i saw you you've put on weight so im not gonna put you on them....at this point i piped up yet again saying: "Ive put on weight cause im not active, i dont have a job anymore so im not excercising like i was when i was working! (by this time i broke down into tears) do you not know what this is like for me? every day apon waking i firstly thank god i woke up followed by doing a body check so i know how my day will pan out for me, then if im in pain i take pain killers all day but (i explained) they only last 20 mins then i have to wait 4 hours for the next dose, YOU cant leave me in this way, ive had enough of this stoopid lupus and i cant go on another 4 months without any sort of help!!!"
    "All im asking for is another course of flamming steroids, ive not been on them for 3 and a half months now can ya not give me that!!?? or do you want me to have NO LIFE!!!"

    So he said he would....YEAH DAMN RIGHT YOU WILL, by this time i thought what is the point of all this!! why am i not being seen by MY rhuemy why am i being seen by this idiot who dont even know me!!?? so he gives me a course of predisolone to take for a month (tapered) and sends me on my way....hold the phone i said i aint finished!!

    So he then says what is it now? i told him about the burning sensation i get in my shoulders and shooting pains in my legs and arms...by the look of his face i knew what he was gonna say so i said it first "But i guess your gonna tell me its lupus related arnt you? because i dont EVER get a proper reason for why its hurting OR whats going on with my body"

    I walked out that room saying right well about time i see a LUPUS specialist then isnt it?

    I tell ya...after my MRI and results im going str8 back to my GP and asking to be referred to St Thomas' in London i cant take this anymore, i get the feeling summin bad is gonna happen....im usually right with that, also i dont get to see him until the 17th December, he said after my MRI appointment if theres nothing seriously wrong then they wont contact me b4 my app in december, if it does show summin then they will call me in and send me off the see an orthapeadic person.

    Right im bored....completely fed up with all of this, but thankfully i got what i was given both the steroids and what i thought all along.....If it aint rhuematoid artharitus then they aint intrested or bothered with you, Which makes me think...what is the point!?


    ISDM
    Last edited by iseedeadmonkeys; 07-16-2009 at 12:45 PM.
    **The next or $ raised WILL be the cure for LUPUS**



    ☺☻If YoU gOt OcD aNd YoU kNoW iT....wAsH yA hAnDs☺☻

    ..♪♫**.❤.**☆.。.*✿♪♫**.❤.**☆.。 .*✿

  2. #2
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    Head hugs..Jane. I am sorry about the arm wrestling with the doctor. I don't understand why doctors are the way they are and why is everything up for debate with them.

    If it is God Complex like I've heard mention..sheeesh they get their knowledge from a book written by man...information obtained by people like us... the sick...

    I felt exhausting reading your plight...I took a deep breath thinking about my appointment on August 3rd. Gearing up, for a road trip to hello. I am in the market for a new doctor...so hopefully the 3rd will be jackpot.

    Regarding the x-ray....the x-ray won't display any herniation. Will though for Arthritis..disk degenerative disease...and etc. MRI is for soft tissue. I do hope regardless of what the x-rays yields I hope they will order an MRI for you....

    Have they every tried cortisone shots in your back? Last year I had 5 in one vicinity..middle upper back, between the blades. Helped, but it isn't permanent for some. I am one of the some. Need the jabs again.

    Rest, relax...deep breaths and try to take my Basketball crown from me...

    Love ya..
    Hugs,
    Oluwa
    I have Lupus. So *^#@! what.

  3. #3
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    Hello MO

    Now thats nice just what i wanted all along...to be treated like a person not a time waster!

    Sorry i forgot to mention about the injections of cortisone to my back he did mention that he just wants to rule out its not nerve damage also.....il stay with him for tht one!

    Im rooting for you with your appointment, i hope you get things sorted for a change, i will be thinking of you not long now

    in regards to your crown....i see ypu have seen the secret to the game, took me ages to work it out til "i read the instructions" lol

    peace with you

    ISDM
    xxx
    **The next or $ raised WILL be the cure for LUPUS**



    ☺☻If YoU gOt OcD aNd YoU kNoW iT....wAsH yA hAnDs☺☻

    ..♪♫**.❤.**☆.。.*✿♪♫**.❤.**☆.。 .*✿

  4. #4
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    No, I don't read instructions...Practice love, practice. Get the finger action going and viola. I didn't make it to the 4th 1/4....wonder if I had would have I broke the machine....

    I'll have to read the instructions and maybe get a holy wow score....BRB...Hugs.
    I have Lupus. So *^#@! what.

  5. #5
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    Ah, you dawg you took it...lol. I'm coming for it, now I really have to read the secret...BRB with MY crown. OXO
    I have Lupus. So *^#@! what.

  6. #6
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    Oh, I learned the secret before...here I come....
    I have Lupus. So *^#@! what.

  7. #7
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    Hahaha too funny....


    Priceless!!


    xxx
    **The next or $ raised WILL be the cure for LUPUS**



    ☺☻If YoU gOt OcD aNd YoU kNoW iT....wAsH yA hAnDs☺☻

    ..♪♫**.❤.**☆.。.*✿♪♫**.❤.**☆.。 .*✿

  8. #8
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    Ugh..I fell flat...but there is tomorrow. Oh, BTW..I figured out why my insides were shaky. I took a wate pill to drain my legs and finger and didn't chase it with my potassium...could be, could be. So, I dosed...

    If feeling fine..I may have a go at it before nightfall...and you may just wake up with a lighter head. One less crown...

    Toodles.
    Love.
    M.O.
    I have Lupus. So *^#@! what.

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    hay babe sorry to hear you had as ruff as time as i did with mine glad you had guts to stick up for your self and get your steriods!!!! i think your right about asking about st tomas i also been thinking about asking to be reffered to pain clinic see if that helps xxx
    much love to you my dear friend hope steriod quickly kick in for ya babe xxxxxx

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    Default hi

    Oh my Gowd Jane....did you see my Doctor I know it aint funny ,but oh my what an obnoxious unhelpful doctor you saw.You experienced what i get most times.Im so sorry you went through this you so needed help today.Deffinately see your gp n change doctors/rheumi immediately. Im so angry they didnt help you but made matters worse.Toss** they are.
    Just breath and think....'things happen for a reason you can not yet see'' maybe there is a fab doctor arund the corner who will help n support you better in the future. Each time things like this happen to me...along comes help in some form or other...so hang in there.We understand you!

    Love n hugs n 2 fingers up to the god complex doctor who will get hemeroids!!
    Amanda.xxxxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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