i'm not sure how to help. yes i had the same problems .
i do know that the best time for me was in the morning before getting out of bed, i wasn't as tired or hurting. than i would right away take pain meds.
sounds like you should do energy drink also in morning.
if your husband really loves you he will understand. and the way you talk he is understanding and loveing man. so just sit him down and tell him the truth.
my didn't understand the illness at all so we ended up parting. i think if he could get it we might of had a chance and don't get me wrong there were other issues. we were married for 20years.
sorry not much help. but there might be someone along with better advice