I am so sorry you are feeling so yucky but I am happy that today was better! I hear those pills really can work for some people and I agree with Chriss, I think you should try them and give your body a chance to respond. I also agree with Spanglishqueen, call your doctor, It is really important that you document everything and that you and your doctor are on the same page when it comes to the treatment of this disease. Make it very clear when you talk to him that steroids are not an option at this point. Remember, you are your own advocate and you have to be strong when dealing with your disease and all the doctors involved. Hopefully he will work with you and try to find something else to relive some of your pain. Good luck love and keep us posted on how the new pills work and what your doctor has to say. I am sending you healing thoughts and gentle hugs tonight
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram