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Thread: Awesome NY Times Lupus piece!

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  1. #1
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    Default Awesome NY Times Lupus piece!

    http://www.nytimes.com//interactive/...tml?ref=health

    This comment really blew me away and summed up how important an article like this is for such an unknown disease:



    Last night at my husband’s office party, his co-worker gave me a seriously long hug, clutched my arm, and looked deeply into my eyes. “How are you?,” she asked. “I’m great I replied.” “No. Really. How are you feeeeeling?,” she asked.

    When you are young and living with incurable cancer, everyone thinks they have a perfect understanding of your disease, expects you to feel like crap, and thinks you are a heroic trooper when you don’t.

    I find this whole charade is maddening. But, after listening to the voices of lupus, I recognize that I am lucky to have a disease with good name recognition that others take seriously. Prior to my cancer diagnosis, my doctors suspected lupus. I now see what a very different social experience I would be having were that my diagnosis.

    http://everythingchangesbook.com/
    — Kairol Rosenthal

  2. #2
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    Kirsten,
    Thanks for sharing this. This was very interesting to me.
    Sandy
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



  3. #3
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    Thanks for sharing!
    Diagnosed in 1990 at age 11.
    Trust in the Lord with all of your heart!

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