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Thread: Irritable bowel syndrome

  1. #11
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    Gina,

    I don 't think there's a medication out there I haven't treid. what's so bad now is a I am diabetic. my level want stay under 200 must days, because of my eating take the sugar away it takes the rest of the food away.

    I still agree with you with all the other symtopms(spelling) I think lupus other than the RA. Lupus would explain so much.

    Have a great weekend
    Lea
    SLE Lupus diagnosed 8/8/11
    COPD,Raynauda's, IBS, Asthma, Sleep Apena, Amenia and Arthritis,Diabetes,Reflux TMJ, temporal arteritis
    Half dead, cripple and crazy but still above ground.
    Medication
    Novolog injections, Medrol injections, MTX injections, Dicyclomine, Plaqulin, Iron, Spreva inhaler, Advair inhaler, Albuteral inhaler, Fish Oil, Calcium, Diclofenac, Citalopram and doxcycline

  2. #12
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    Thanks everybody for the great info. I had IBS since I was 15.
    But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint. Isaiah 40:31

    Take Care,
    Becky

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    Leann,
    I just was looking to see if Danica had replied to my message and saw all the ones from you and Gina. I am pretty sure that Dicyclomine is also what I was taking and it didn't work for me either. You mentioned that you doubted IBS because you had never had diarrhea, but IBS could be make a person suffer more from constipation (like you) or diarrhea or even a combination of both (like me). I have found that food triggers will set off with diarrhea but stress triggers will show with constipation for me. A lot of people swing more strongly one way then the other and require different meds. Zelnorm is supposed to be good for IBS patients with constipation. The pain from the gas bubbles that I have gotten have made me think about running to the ER countless times. God bless your husband for helping you ease the pain with all those back rubs.
    "Finaly a doctor thought that I had a problem with eating after it was explained that these flair ups come when I was eating different things. still that doctor had no real answers." With my IBS, there are definate foods that will trigger me more then others. (Except for dairy products) you hit the nail on the head for me when you said that processed foods are worse for you. I also don't eat much red meat, pork or turkey any more. Chicken, thankfully, is still ok with me. Prepackaged foods are a no go on my stomach too. If I reheat, I do so knowing that the meal might just upset my body even if the first cooking of it was perfectly ok. Even then, I tend to not microwave certain things, like meat, because I just know now that the microwaved version will upset me. I can deal with frozen veggies, most of them anyway, but fresh is soooo much easier on my system. I think it's fantastic that you and your husband experimented in the grocery aisles. I never made a list like you did, but I did learn to read the labels, and eliminate bad ingrediants and to "test" new foods for a reaction. It's amazing what you find in seemingly healthy foods when you start to read the labels.

    To me, it sounds like you could have IBS, but did any of these doctors test you for Chrone's, IBD, Gluten Intolerance, Ciliac disease? What you said about the bread "I can not eat any food that has cornmeal in it as grain foods are really bad. If I do eat grain I have to make it whole wheat and can only eat one piece like bread that is for the week other wise I will be at the hospital" reminds me of how I felt during one particularly bad flare where my doctor was just about convinced that I was Gluten Intolerant as well. I have also heard of Celiac disease, Chrone's and Gluten Intolerancy causing massive weight loss like you had last year. Have you had food allergy testing done?

    Like you, I also have diabetes and I know that when my stomach is upset, my sugar is higher then when it's good. The diabetes has also helped me to learn not to eat complex sugars and I found that helped my stomach a little too.

    I was wondering about the water for you and Gina - when you say that you drink water and it upsets your stomach, is it cold water??? Cold water definately is more upsetting to my stomach then room tempature or hot water. I try not to drink cold water at all since it has caused me stomach cramps and gas and a run to the bathroom more then one time before.

    Gina - greasy foods, fried foods - they are no longer a part of my life. They just kill me. Like you, there are times when my IBS is raging out of control and other times when I feel like I can eat and do whatever I want. When I am having and IBS flare, I can't eat any roughage (sp?) either. Totally low residue for me until I settle back down. When my IBS is controlled, roughage is the best thing in the world for my stomach, but there are certain veggies that are just no good for me even then, like cabbage.

    Sandy
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



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    Sandyr,

    When it comes to eating I have been tested for it all, Chrone's, IBD, Gluten Intolerance, Ciliac disease you name it. For the longest time it was thought to be Chrone's but that was not the case.

    I have been tested a long time ago and was found to have a couple allergies noting major. I have treid all the medicnes zelnorm didn't do a thing. There was a time when I was taking medication and had to take medication just to the first medication,(if you can understand what I just say) It got crazy.

    Yeah the hubby spent many nights for the longest time rubbing my back trying to help, we would go in the doctors office and he would be rubbing my back so that the doctor could see all my gas, once they did a x ray and you could see all the gas bubbles in my back. It was wired. I have taken shots for this and tried all sorts of things. Not eating the food is the only way.

    One of the reasons I say it could be something else is that when I was a baby I spent awhile in the hospital not being able to eat, don't know much about it and the hospital that I was in is no longer there anymore. ( My mom can not be much help as her mind is not what it use to be). Maybe it is and I don't want it to be, that could be alot of it.

    I am stil working on, I take time to try and test different things to see what works with my body.

    thanks will think about what you said and keep on studying to see what I come up with.
    Lea
    SLE Lupus diagnosed 8/8/11
    COPD,Raynauda's, IBS, Asthma, Sleep Apena, Amenia and Arthritis,Diabetes,Reflux TMJ, temporal arteritis
    Half dead, cripple and crazy but still above ground.
    Medication
    Novolog injections, Medrol injections, MTX injections, Dicyclomine, Plaqulin, Iron, Spreva inhaler, Advair inhaler, Albuteral inhaler, Fish Oil, Calcium, Diclofenac, Citalopram and doxcycline

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    Sandy,

    You are an angel! It is all so overwhelming especially when you have to stop eating things you used to eat everyday. We don't even buy dairy products at the store and Tim has been a trooper though it all. My IBS was so bad and the lactose issue was so bad that if I went out to dinner and ate something with dairy........I wouldn't even make it home, I would have to stop at a gas station just to go to the bathroom. This was so embarrassing that I finally stopped going out to dinner and have started cooking healthier dinners at home. It amazed me at how fast it hit and how fast my body decided to reject it. Like you, I loved anything with cheese!!!!!!!!!! Ahhhhhhhhhhhh, just talking about it makes me miss cheese:-( I am slowly getting used to it but for right now I have to keep everything dairy out of my diet, even butter upsets my IBS. I have tried almond milk for cereal and I need to try rice milk.I love chocolate soy milk, it is rich and creamy just like real chocolate milk!!!!!! I love the tofu ice creams......I just had a scoop of the cherry chocolate chunk one and it was delicious I am going to follow your recomendation and not use the lactaid pills until my stomach has adjusted and settled down a bit. It is still sore to the touch so I need treat it well. I do need to find a good daily vitamin that contains all the calcium I could possible need. I worry about not eating dairy and what this will mean for my bones later in life. I guess time will tell. Thank you so much for talking to me and if you don't mind, when I have questions about this I am just going to come to you. I am crossing my fingers that it get easier and easier. The most embarrassing thing for me is when we go to our friends houses for dinner, sometimes I have to pick at the food and I just feel so bad. Thankfully they have all figured it out and we actually had a dairy free dinner at a friends house Saturday evening! My friend was so proud that everything......even dessert was dairy free.....she did very well!!!! Again, thanks for all the support during this transitional period in my life.

    Love
    Danica

    As I grow to understand life less and less,
    I learn to love it more and more.

    Age 29, Lupus for last 7 years

    Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram

  6. #16
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    dancia01,

    I truely understand what you say about not being able to go out to eat. I gets horrible and embarrassing...My husband and my kids and mom have been so understanding about this.My mom she will call if she knows I am coming for dinner and let me know what she is having and make sure I am ok with it...
    On the other hand my MIL she makes stupid comments about (like its all in your head) (We can't eat anything when you are around) calls me the pickie eater. (and yet she wonders why we don't come to house much, my husband can't stand what she does.)

    Regular dairy is not as bad as I see most have it. I can eat cheese as long as you don't cook it. I can drink milk as long as it is not cooked. considered by milk stright from the dairy just to see if I could could it and that would make a difference. I once talked to someone who had a dairy and he suggested that, may that we be a choice for some of you...

    when it comes to eating I have tried most everything. My eating problems got so bad at one time I considered suscide because I was losing weight so fast and the pain and gas was sending me to the hospital and doctor just about everyday. I was given pain shots to keep the stomach pains down, didn't work. It took me a long time to come to grips with this...

    I have had eating problems since I was born. At one point in my life I weighted 450 lbs. that was my highest. In that same year I went down to 275 crazy... right now I am back to the losing weight part of it. Right now I stand at about 160 holding steading but see it starting to drop again...

    What really gets me is If I go out to eat I ask what is in everything and sometimes you don't get the full answers... My husband loves chineese food and we went to this small little place. I ask about some mushrooms they had, seemed ok but after eating them had to go to the hospital, later we went back and had discovered they had ground up chicken and put on them. Chicken is a big problem

    My husband goes out of his way to make sure I don't eat anything wrong as every year he grows a graden just for me to make sure I can eat everything fresh. But still it is very hard. Like someone once ask me what do you have a problem with I responded with it would be easier to tell you what I can eat then what I can't eat.

    What I really miss about this is my grits thats what I miss...
    Lea
    SLE Lupus diagnosed 8/8/11
    COPD,Raynauda's, IBS, Asthma, Sleep Apena, Amenia and Arthritis,Diabetes,Reflux TMJ, temporal arteritis
    Half dead, cripple and crazy but still above ground.
    Medication
    Novolog injections, Medrol injections, MTX injections, Dicyclomine, Plaqulin, Iron, Spreva inhaler, Advair inhaler, Albuteral inhaler, Fish Oil, Calcium, Diclofenac, Citalopram and doxcycline

  7. #17
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    Wow,
    i am so sorry that you have tried everything and nothing works. mine only acted up durning flares or cetain foods, not the list you have.
    i hope they find something to help you.
    hang in there, there is always light at the end of tunnel hard part getting there.
    Keep Smiling

  8. #18
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    Leann,
    You sound so much like my daughter, Hillary. When she was a baby, she started having terrible colic and rashes, and she was eating nothing but breast milk. Luckily, we found a great pediatric allergist. We determined what I was eating that she was reacting to, and we changed my diet, rather than hers. I couldn't eat tomatoes or strawberries for the two years that she was nursing, but that was sure better than having a sick baby.
    Later, when she was eating solid foods, we had to check very carefully for what she reacted to. She was lactose intolerant, but she could handle fat-free milk. My mother was always upset that I didn't give her "real" milk. Once, when we went to visit her, she immediately handed Heather & Hillary each a big glass of whole milk. Shortly afterward, Hillary was clutching her stomach and moaning. For the first time in her life, my mother went out and bought fat-free milk!
    Hillary seemed to outgrow her food allergy problems, and had no problems as a teen. Now she is 30, and the lactose intolerance and food allergies have returned worse than ever. She's having a really tough time. Something interesting - she's also been told that she is pre-diabetic. After reading this thread, I'm wondering if these things are related?
    I'm not diabetic, but I have several auto-immune problems. Allergies and asthma are also common in our family, too. This is making me wonder if my kids are going to develop the auto-immune issues that I have. My mother and my aunt had many of the same symptoms that I'm dealing with, too. I wish that the scientists would work on finding the genetic links between all of these things. I'm thinking that there definitely are some connections.
    Marla

  9. #19
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    leaann, oh love, I understand exactly how you feel! The pain in our stomachs can be so horrible that it is even hard to walk.When mine is really bad, nothing can touch my stomach because it hurts to physically push on my belly. It is so hard having to adjust your life according to your lupus but everything else that follows just piles on top and keeps growing. I can not have dairy anymore, I have severe asthma and my blood pressure is higher than my 79 year old grandma's! Oh, what are we to do? I guess we just get up everyday and we just keep going until we get to a good day. Promise me that if you ever start feeling really bad about everything you will tell me. I am so happy you are hear and would miss you if you were gone. Pooh on the ones who make you feel bad for feeling yucky and remember, it is NOT in your head!!!! We have all been told that at least once and many of us have heard it a lot. You will figure everything out eventually and the people who doubted you will feel very foolish and hopefully it will teach them a lesson in humanity and they will treat others much better. Just hang in there love and remember you are not alone. You have a great husband that wants to take care of you and watch out for you and you have an extended family here and we will always be there for you.......good times and bad! Tonight I am sending you lots of hugs

    magistramarla, I understand your worry about your daughter. It is possible it could all be connected but time is the only thing that can tell us that. You are a wonderful mother and it is wonderfulthat you look out for you daughter. The story about your mama made me smile! Now when I go back home to visit my entire family makes sure that I eat dairy free. They thought it was a big joke at first because I did not have it as a kid, same as my asthma, but eventually they educated themselves and understood. It feels wonderful having a great support system behind you doesn't it? Just remember that if your daughter has any auto-immune issues there is nothing we can do about it right now so try not to worry to much, I don't want to see you sad or feeling yucky. I am thinking of you tonight and I will talk to you tomorrow. Sleep well my friend
    As I grow to understand life less and less,
    I learn to love it more and more.

    Age 29, Lupus for last 7 years

    Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram

  10. #20
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    Oh leanne, I didn't realize I had missed so much on this post. I can honestly say that I have (briefly) felt that way too and it was the darkest, scariest feeling ever. I am so glad to hear that you have a wonderful husband to love you and help you and take care of you when you are feeling crappy. Pun intended! Promise me too that you will reach out if you are feeling that way and I promise you that I will do the exact same thing with you. They tested me for all that too. Did an endoscopy and colonoscopy, been to multiple docs. Only thing they found significant, gastritis. Not significant to the IBS (except to say it's in a flare at the time they found it) but significant to the other AI issues. I am assuming you had an endoscopy and colonoscopy too???

    Danica, you are always free to reach out to me. I only wish I had realized you had wrote that much sooner. It hits me really fast too. Tonight for instance, I gave in and ordered the Chinese food and had only just finished when the thunderclouds in my stomach started. it's really frustrating. I've been the girl in the gas station bathroom too. No fun.

    Magistramarla - couple of things I have learned about LI is that Caucasians are the least likely to be affected. People of Asian, Hispanic and Black descent are most likely to be affected by their 30's. I was told by my doctor that first diagnosed me that this has to do with traditionally weaning their (the Caucasians) young off of breast milk at an earlier age and also with the dairy markets globally. Americans and Europeans drink more milk as adults then other populations. Naturally, our bodies are not supposed to be able to break down the lactase enzymes through adulthood since throughout evolution, we have not done so before. Since the advent of "drinking milk because it's good for you" (which is an ad paid for by the dairy farmers and the dairy counsels to increase sales and profits) people, mostly in western cultures, have started drinking milk over longer periods of their life time. I think there is a link with the diabetes and lactose intolerance. But I think the link is that we (diabetics) have a hard time handling the milk because of the sugars in the milk. This is just my little conspiracy theory though.
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



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