The malar rash on your face maybe triggered by other factors that affect Lupus...stress, insomnia...eats. The malar really isn't a manifestation of the sun, but of Lupus itself. The sun can aggravate it, medicine can cause increased in light sensitivity...but Lupus is the cause. We do the sun protection rules to prevent totally or aggravation of all symptoms.
You could live in the dark, but you would, could still have the malar rash.
Sun protection is to prevent our symptoms from being triggeres, joint pain, fatigue, rashes.
Photosensitivity is another manifestation, feature..symptom of Lupus.
Abnormal light sensitivity, or "photosensitivity," is a major feature of both systemic lupus erythematosus (SLE), which can affect any organ or system of the body, and cutaneous lupus, which is mainly limited to the skin.
The two most common forms of cutaneous lupus are discoid lupus erythematosus (DLE) and subacute cutaneous lupus erythematosus (SCLE). DLE and SCLE are described in detail below.
How common is photosensitivity in lupus?
The American College of Rheumatology loosely defines photosensitivity as "a skin rash as a result of unusual reaction to sunlight." Using this definition, photosensitivity has been identified in one-half to three-fourths of people with systemic lupus.
In people with cutaneous lupus, photosensitivity affects 50 percent of those with discoid lupus and 70-90 percent of those with subacute cutaneous lupus.
How does photosensitivity show up in lupus?
- Sunlight can cause new skin lupus lesions (sores).
- Flares of internal lupus disease, including joint pains and fatigue, can also be triggered by sunlight.
- Some medications increase the effects of the sun on a person's body. People with lupus taking these drugs including tetracycline antibiotics and many others may also very occasionally develop "phototoxic" reactions. These will lead to easy sunburning, so if you are taking these "photosensitizing" medications, you will need extra protection against sunlight. Ask your doctor or pharmacist if any of your current or new medications might make you extra-sensitive to the sun.
Why are people with lupus so photosensitive?
The science of sunlight in lupus is complex and poorly understood.
- Several studies over the last 30 years have looked at the role of ultraviolet (UV) light in lupus.
- UV light is invisible radiation from the sun. It has a shorter wavelength than the visible light and heat we all recognize.
- UV is divided into UVA, UVB and UVC (which does not reach us because it is absorbed by the atmosphere).
- In general, UVA mostly ages the skin and UVB mostly burns the skin ("A Ages, B Burns") although UVB also contributes considerably to skin aging and cancer.
Take daily precautions while in the sun, for your whole body....
Do you have any of the rashes and symptoms above mentioned for photosensitivity? You may have that...
Me, while in the sun, I can get rashes on my forearms...my malar becomes brilliant red, increase fatigue and pain...but this year I am able to stay outside longer than before. I still take the same precautions but last year, just a few minutes outside it would make me nauseated, dizzy, rash and pain.
Hope this helps...