welcome to our world-wide family. you will find an abundance of knowledge and compassion among our memers. Please find peace in the fact that we are here, and no one will ever turn their back on you.
You have been through so much the past few years. I hope your disability gets approved very quickly, and that you can go to the dr. whenever you need to.
Yes, lupus is extremely scary....all of us have gone through the realization that our lives have changed, our normal routines are no longer, and that we must find new ways to live our lives each day. Even though you are not alone, i know that you are justifiably very frightened. We are here, and will walk each step with you.
To prepare for your dr. appt., i recommend that you think back through time, and make a list of all symptoms that you have ever had. Even if the symptoms are not presently active, write them down. This will help the dr. narrow down what might be going on with you.
Hopefully, once you see the rheumy, he/she will start you on Plaquenil. This is the standard lupus medication, and lots of people get significant relief from it. However, it can take up to 5 or 6 months for it to work, so if you start, don't give up and quit. Also, often plaquenil causes some stomach issues in the beginning. But, they usually subside after a few weeks.
There are other options including steroids and immune suppressent medications. Many of us are on one or both of these, and we can help you ease the worries about taking these medications.
Your husband sounds like a true dear, and i am so glad that you have him on your side.
Good luck, let us know how your appointment goes tomorrow.