It is hard. We do look for diagnosis because we have to find an answer to why we feel the way we do. It is peace of mind for us. It allows to say, hey, I knew something wasn't right and finally someone believes me. It is something you will search for and hope for until the day it comes. The bad news is, it may take a bit in order for them to figure out what is going on. This is where I have learned the greatest lesson and received the greatest gift from my Lupus.........the ability to be patient. It is easier said than done and we all can agree with that! Also, remember that you are your biggest advocate and you will only be able to really count on yourself to push for the answers you are longing for. With that, if you have a gut feeling that something isn't right and you do not feel like you are getting the care you need.....get a second opinion. A good doctor would back that up and understand the need for it. There is also nothing wrong with waiting to see what the lab work says. It should only take a week to get it back and the doctor can send you the results and you can then take them, along with everything from your family doctor, to the doctor you choose to get a second opinion from. I was told I had carpool tunnel syndrome and I new in my heart that they were wrong so I got a second opinion. It was the best decision I made for myself and this will have to be a decision you make for YOURSELF! I will be thinking about you and sending you hugs while you try and decide what is best for you and your peace of mind
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram