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Thread: Guess i posted on the wrong board...

  1. #1
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    Default Guess i posted on the wrong board...

    Just posted on another section first, oops.
    I'm 44, just got a prelim diagnosis last week (DSDNA 13, ANA positive, rheumatoid factor negative) but since I also have a weird autoimmune-involved diabetes, I'm waiting to see what my endocrinologist says, then a couple weeks later I have an appt with a rheumatologist. Thank GOD i've got decent health insurance!

    I'm not having a lot of symptoms except fatigue and joint pain (mainly in my hips). Because of the fatigue it's hard to work sometimes, so I cruise this site when I'm too tired to think hard. I just hope our IT guys don't catch on and block this site!

    Thanks to all for your great posts and support here. It sucks having lupus, but you can't let the things you can't control get you down.

    Cheers,
    brian (widebody)

  2. #2
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hello Brian,

    My name is Rob, I'm 41 and was diagnosed with Systemic Lupus five years ago. I'm also a Moderator here, and I don't get too worried about posts possibly being in the wrong place at times. Priority one is making sure our members can communicate with each other in the easiest, fastest way possible. Constant nitpicking of little things by moderators/admins is counterproductive to that goal. So don't sweat it, you've done nothing wrong.

    You'll find we're a very open, laid back, and easy going group. There's tons of practical advice, and alot of understanding people here. So welcome to our group, and please make yourself at home!

    Rob

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    Default hi

    Just to say hello n welcome Brian.

    love
    Amanda.xxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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    Quote Originally Posted by widebody View Post
    Just posted on another section first, oops.
    I'm 44, just got a prelim diagnosis last week (DSDNA 13, ANA positive, rheumatoid factor negative) but since I also have a weird autoimmune-involved diabetes, I'm waiting to see what my endocrinologist says, then a couple weeks later I have an appt with a rheumatologist. Thank GOD i've got decent health insurance!

    I'm not having a lot of symptoms except fatigue and joint pain (mainly in my hips). Because of the fatigue it's hard to work sometimes, so I cruise this site when I'm too tired to think hard. I just hope our IT guys don't catch on and block this site!

    Thanks to all for your great posts and support here. It sucks having lupus, but you can't let the things you can't control get you down.

    Cheers,
    brian (widebody)
    Hi Brian,

    I also like to welcome you here, I have only been here a few months, but I felt right at home. I think this is the BEST forum.
    My name is Debbie, I am 53 and I was diagnosed with lupus SLE, Ra and Fibro, about two years ago. And you are so right, lupus sucks.

    Debbie

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    Default Hey Brian

    Welcome to the forum. As everyone has said...no apologies necessary here. Lots of friendly people, great advice, and friendship. Check out everything this forum has to offer. It helps to know you are not alone.

    Take care,

    Jana
    Life is measured not by the breaths we take, but by the moments that take our breath away.

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    hi brian,

    so sorry that you struggle with this disease, but it sounds like you are doing a good job of managing your symptoms....congrats, and i hope you continue to feel ok.

    This is a great group of people (as you can tell from browsing around), and i am so glad that you decided to join. Please know that you can count on us if you every need anything....
    Phyllis

    share a smile today

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    Hi Brian!

    I'm Sandy. I'm relatively new to this site too. Like you, I also have diabetes, but I have been controlling it with diet. I think you will find that this site is a wonderful place to escape to when the aches and pains and fatigue are just too much to deal with. Welcome!

    Sandy
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



  8. #8
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    Quote Originally Posted by rob View Post
    Hello Brian,

    My name is Rob, I'm 41 and was diagnosed with Systemic Lupus five years ago. I'm also a Moderator here, and I don't get too worried about posts possibly being in the wrong place at times. Priority one is making sure our members can communicate with each other in the easiest, fastest way possible. Constant nitpicking of little things by moderators/admins is counterproductive to that goal. So don't sweat it, you've done nothing wrong.

    You'll find we're a very open, laid back, and easy going group. There's tons of practical advice, and alot of understanding people here. So welcome to our group, and please make yourself at home!

    Rob
    Rob,
    I have got to say something about this forum, it is THEBest, the people here are so nice and caring. I am from Germany and have also joined a german lupus forum, so that I could learn the german lupus jargon, in order to explain this illness to my family in Germany. I tried to explain it, but only knew our jargon here. That forum has alot of nitpicking and even points out to people that they misspelled something. I think that we have enough problems, we don't need to create more problems.
    I love you guys here, everybody is sweet and compationate.

    Debbie
    Last edited by debbie-b; 06-30-2009 at 05:51 PM.

  9. #9
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    Default thanks!

    Y'all are great -- thanks for the kind words, the support, the concern. It's great to find a place like this.

  10. #10
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Quote Originally Posted by debbie-b View Post
    Rob,
    I have got to say something about this forum, it is THEBest, the people here are so nice and caring. I am from Germany and have also joined a german lupus forum, so that I could learn the german lupus jargon, in order to explain this illness to my family in Germany. I tried to explain it, but only knew our jargon here. That forum has alot of nitpicking and even points out to people that they misspelled something. I think that we have enough problems, we don't need to create more problems.
    I love you guys here, everybody is sweet and compationate.

    Debbie
    Thank you Debbie-we aim to please! I had to laugh a bit about the pointing out of misspelled words on a Lupus website. Jeez, that must be kind of like handing out speeding tickets at the Indy 500! We all screw up our spelling here due to brain fog! I find the best way to promote good conversations is to just let people talk. As long as everyone is getting along, and there's no spamming or excessive bad language, there's no need to interrupt people. And, with brain fog, sometimes we can ramble a bit and end up going off topic, but that's just the nature of Lupus. Anyway, thanks again!

    Rob

    PS-I cheat and use a Vista voice recognition program to write with, as long as it hears me right, it spells everything right. Wonderful invention!

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