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Thread: Intro and hello.

  1. #1
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    Default Intro and hello.

    My name is Lisa and I am in the process of a lupus diagnosis. It is taking SO long and I have no idea how long to expect...

    I have a positive ANA with a low titre (1/320), my sed rate is 35 and my c-reactive proteins is 16.5. I also have elevated GGT (47).

    I have a faint butterfly rash, ankle pain, hairloss, headaches and extreme fatigue. I am also irritable and have a terrible memory.

    I am a registered massage therapist and homeschooling mom to two boys, aged 4 and 6... some days I just can't get going and I feel like a horrible mom.

    I woke up yesterday feeling tired. My legs and feet ached as soon as I stepped out of bed and today is worse. What is happening?

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    Hi Lisa,

    Welcome to WHL, you came to the right forum, to get answers, friendship and understanding. It sounds to me like you may have lupus. If it is, you will experience new symptoms all the time.
    I was diagnosed 2 years ago, with Lupus SLE, RA and fibro. I still get new symptoms all the time, numbness, fatique, joint pain, tissue pain and much more. Hopefully you will be diagnosed and put on the right meds.

    Debbie

  3. #3
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hello Canadian Mama,

    My name is Rob, and I was diagnosed with SLE five years ago. You should feel right at home here as we have quite a few members from Canada. You'll find some great people with many years of experience living with Lupus here. There are many people like you who are waiting for a diagnosis. It can take an awfully long time for some.

    At the top of each forum page you'll see a bunch of articles about almost every aspect of the disease. It's solid info that can help you know what to expect. And of course, any and all questions are welcome here. Welcome to our group!

    Rob

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    Hello Lisa,
    Sorry to hear what you are undergoing but I just wanted to extend a warm welcome to the site. since joining in March I have made numerous cyber friends who are extremely supportive and helpful. I hope you find the same.

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    hi canadian mamma,

    so sorry about your diagnostic process. This is such a scary and overwhelming part of our life with lupus. When do you see the dr. again? Until then, i recommend that you browse around this forum and read about the different symptoms that we experience. Make a list of all symptoms that you have or have had in the past. Take this with you to your next appointment.

    When your dr. diagnosis you, he/she will probably start you on Plaquenil. Some people get really good results from this med, but it can take up to 6 months for it to work.

    If you continue to feel worse and your appointment is far away, you might want to call the drs. office and let them know, maybe they can get you in and help you get some relief.

    I know you are frightened, this is a frightening disease, but we are here and we will help you overcome any obstacles that you face.

    welcome to our family of the sky.
    Phyllis

    share a smile today

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    hi Lisa,

    Like you, I am new to the site and am awaiting a formal diagnosis. This forum is the best thing there is for a bad mood, feeling bad day. welcome!

    Sandy
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



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    Thumbs up texann

    just want to say that i am so glad to have others to talk with and that understand what we are all going thru!!

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    Default hi

    Just to say hi and welcome,yet sorry about what you are going through and so understand the frustration n fear. We are all here for you,so ask us anything,tell us anything,we will be here to support you.

    lots of love
    Amanda.xxxxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  9. #9
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    Welcome Lisa and ((((hugs)))). Hang in there and go easy on yourself. You're not a horrible Mom.

    I hsed both my kids. Both graduated last year. I'm already missing it. Those years are some of my sweetest memories. I had a lot of pain and strange illness that was never explained until lately...and I still have no real diagnosis. (They're leaning towards lupus.) Although hsing is a tremendous job, it was the sweetest time in my life.

  10. #10
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    Hi Lisa!!!!! Welcome to our family! I am sorry you are going through a tough time right now. I remember struggling with no diagnosis for years and it was so emotionally and physically challenging. It was hard to find relief from the symptoms and life just seemed so sad. We have all been there and some of still are. You are not alone anymore!!!! I think it is amazing that you home school your boys and it must be difficult on the bad days. You are an amazing mom even when you feel down!!!!! Your boys are lucky to have someone who cares for them like you do. Please keep talking to us and jump in anywhere on the forum! We would love to hear more from you
    As I grow to understand life less and less,
    I learn to love it more and more.

    Age 29, Lupus for last 7 years

    Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram

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