New to Site
Glad to have found this site. I'm 43 years old and have a great husband and 2 children, 14 and 9. Was dx'd in 2002 w/ SLE and also Antiphospholipid Syndrome. Just wanted to say "hi!"
It is nice to see someone my age (I'm 40), with the wonderful husband. and the kids (14,11 and 5). I was diagnosed in 1981 with SLEand RA. Recently, the antiphospholipid among other things.
Welcome to the site, it is really nice to communicate with people that can say, "I know how you feel."
I'm the old fogie - 52 and no kids. Been Dx'd about 3 years with SLE, and doing pretty well, all things considered.
Welcome to the group, Mitch! It is nice to be able to share.
AHA!! I am the DINOSAUR!! "53 yrs old"!! Diagnosed in 1985!
Re: New to site
Thank you all for your welcome. This seems like a really nice site, I'm not what you would call "computer literate", so I apoligize in advance if this winds up in the wrong place. I am always amazed at how lucky we are to have so much info. and help at our fingertips. I can't imagine how people coped years ago pre-internet!
Like yourself I am newly diagnosed. I am fighting with severe depression and total fear of the whole disease. I have had so much medical information thrown at me in a month, that I am overwhelmed.
I have been to more specialists in a month, than in my whole life put together.
Poked, prodded, medicated!!
I guess to put it in a nutshell, I am scared to death at the moment.
Remember, one day at a time, that's all we can do.
Do you have someone you can talk to about the depression and the fear? Depression is very REAL for many of us with lupus and other conditions. It isn't "all in your head," it is a clinical, chemical issue. For some of us, talk works. For others, meds can bring us back to a more even keel. Don't ignore it!
The fear is also real. None of us know what a day will hold for us. We have to find someone to talk through that fear - to help us find a way to utilize part of it for energy in moving forward, and the rest --- let go and find peace. There is a gift in living each day to its fullest, a certain peace that comes wiht accepting that life is a gamble, that every day should be lived to its fullest. That every day holds joys that will only be held for that moment
Many hugs, dear, if you were nearby, I'd give you one in person. Sometimes a shoulder to cry on is the best medicine, the best way to start into a positive tomorrow.
peace and joy --
Hi Christine, and welcome. I'm so sorry you are feeling so depressed and afraid. It's somewhat of an "outer body experience" feeling, isn't it? I didn't even know what Lupus was - I wound up finding most of my info. from the internet and books. I think what winds up happening is we "settle into" our dx. We just do what we have to (Dr. appt.s , medications, etc..blood work, etc. etc.) and it becomes our new normal. I was beside myself too. I suddenly felt like I was all alone and the world looked so different to me - sort of a blur. That did change, and life pretty much goes on and all the stuff that goes along with it. My kids keep me busy which is probably a good thing. I decided to take it as it comes and worry when I need to, not before. Pacing yourself, and not letting yourself get too overworked is one of the ways I get by. I've learned I can't do what I used to, but I manage to accomplish my goals - I just take longer! Better days are coming. The initial shock is the worst part - it WILL get better. Do things to make yourself happy and don't be afraid! I am so thankful for having places like this to "come to" - it's very comforting. Take care!
reg-tt, Allway's have faith in yourself , this only lupus
:B-fly:I have lupus for 15 years, and if you don't learn to to laugh alittle with this it will surruly take you under. And also have alittle trust in your children because there stronger then you think they are, it take time you all can go through it together andsome day's it's going to be hard work. And if you pray, don't forget to pray together :BIG: