Just plain scared
The Lupus is not the problem, at least the worst problem. I was diagnosed at 18, 22 yrs ago. I recently had a chest CT to determine scared tissue as a result of pleurisy. They found Lymphnodes that are larger than the norm and more of them than the norm. This could all be the result of the immunosuppresent drug, cellcept. I am waiting now for the radiologist to read an old CT to see the progress of the lymphnodes. The possibility of lymphoma is terrifying with three children 14, 11 and 5.
I just wanted to tell someone how scared I am, my mom is not an option, she nags a lot. My DH is the very annoying voice of reason ie, "Don't get upset until we know for sure".