Page 2 of 3 FirstFirst 123 LastLast
Results 11 to 20 of 21

Thread: Please help, I am in pain.

  1. #11
    Join Date
    Jun 2009
    Location
    SE Texas
    Posts
    20
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Quote Originally Posted by debbie-b View Post
    Hi Stacy,

    Reading this, is like you have described my nights. This is exactly how my nights go, I too let my arms hang over the side of the bed, that is the only way to get some relief. My doc also thinks that I have raynauds.

    Debbie
    I'm so sorry to hear what you're going through . Sounds like we are in the same boat with regards to this. I completely understand how you're feeling. I too, have the numbness tingling happen almost at anytime, including while driving. It can be so frustrating, but my biggest stressing point is the interrupted sleep, nightly. Just keep your chin up, and hopefully you and your doc will be able to help you with easing this symptom.
    "When life gives you lemons... search for the vodka"

  2. #12
    Join Date
    Apr 2009
    Location
    Kentucky
    Posts
    1,165
    Thanks
    234
    Thanked 143 Times in 105 Posts

    Default

    If you do have raynauds is yours caused when you get cold? Mine is. When my hands get really swollen and sore instead of putting ice on it I run my hands under hot water for 5 min or so and that helps me. I take Naproxen and that helps somewhat so that they dont hurt so much. I know how much it sucks. I hope you find some relief.

  3. #13
    Join Date
    Jun 2009
    Location
    Kansas City MO
    Posts
    3
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Oh yeah! That's me too! Started when I was in my twenties, when driving or doing anything excessive with my hands would cause them to go numb. How I found about my lupus was when I went to see a doctor about my hands. My pointer fingers gets so sore that I can't rotate it in the knuckle socket. My fingers are sooo stiff and swollen in the morning that it takes hours before I can make a complete fist. The worst part is the pain. I have the most excruciating pain between my knuckles and in the center of my palm. Some days I have noticed that I will just quit using my right hand. I think the main reason that just one hand hurt so much is because of use. I am right handed and use it a lot more than the left. When I use the left more, the pain occurs there.

  4. #14
    Join Date
    Jun 2009
    Location
    Kentucky
    Posts
    1
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default hey girl

    Debbie,
    First off, I'd like to say that I'll keep you in my prayers. And I also go thru a lot of what you're going thru myself. It depends on your medication dosages. Sometimes, but not always, it helps to soak in a tub of hot water with eucalyptus to help calm and sooth. I realize it's painful to the touch, sometimes my fingers and toes get blue-purple coloring when i'm cold. Heat normally helps. As for the tingling, my doc always said even tho i may be in a bit of pain, try and massage or move around. I do hope some of this helps.
    ~Bridgette

  5. #15
    Join Date
    Dec 2008
    Location
    Phoenix, Arizona
    Posts
    1,013
    Thanks
    0
    Thanked 22 Times in 19 Posts

    Default

    That was one of my first symptoms when I got sick! It is horrible and I hate how it wakes me up in the middle of the night. I also have it happen when I am driving or just wen I am doing other activities. I am right handed and it is so hard to even work with my hands when this happen. I really feel for you and I wish that I had some advice to make it go away but I have had it over the last eight years and still have to deal with it almost on a daily basis. Keep us posted.....I am very interested to hear what your doctor recommends. Good luck!!!!!
    As I grow to understand life less and less,
    I learn to love it more and more.

    Age 29, Lupus for last 7 years

    Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram

  6. #16
    Join Date
    Mar 2009
    Location
    Dallas, Tx
    Posts
    1,862
    Thanks
    145
    Thanked 413 Times in 339 Posts

    Default

    Thanks guys, for your well wishes. All my doc. said was to keep my hands warm, but the problem is, the pain happends even though my hands are warm, they are always warm now, that the weather is warm. Like I said, he gave me a cream for circulation, but it does not help. I wake up 3- 4 times a night, because of the pain. Well I guess, I have to wait to see what my new rheumy has to say, my appointment is for August 17th,ugh. I am frustrated and in pain.

    Debbie

  7. #17
    Join Date
    Dec 2008
    Location
    Atlanta
    Posts
    3,115
    Blog Entries
    1
    Thanks
    27
    Thanked 80 Times in 69 Posts

    Default

    hi debbie,

    first, let me apologize for just now responding to your initial post....i don't know where these things hide from me, but they do, and i often find threads several days after the initial post.

    second, i know exactly what you mean about the hands...sometimes mine hurt so bad that i can't turn a door knob, operate the mouse on my computer, or even hold the steering wheel to drive my car. My hands feel like they are burning from the inside, and the pain just makes me miserable. My hands will also turn red, and looks like a below-the-skin rash...so weird.

    My rheumy of many years says it is the lupus and she really does not know how to help. Even the drs. at the Mayo did not know what they could do for me.....so frustrating.

    My theory is that the lupus and or the fibromyalgia are attacking the small tissue in the hands, because it is like i can feel those little b------- eating away at my body.....

    so sorry you are experiencing this, i wish we had answers, but i have not been able to find any for years.
    Phyllis

    share a smile today

  8. #18
    Join Date
    Mar 2009
    Location
    Dallas, Tx
    Posts
    1,862
    Thanks
    145
    Thanked 413 Times in 339 Posts

    Default

    Quote Originally Posted by mountaindreamer View Post
    hi debbie,

    first, let me apologize for just now responding to your initial post....i don't know where these things hide from me, but they do, and i often find threads several days after the initial post.

    second, i know exactly what you mean about the hands...sometimes mine hurt so bad that i can't turn a door knob, operate the mouse on my computer, or even hold the steering wheel to drive my car. My hands feel like they are burning from the inside, and the pain just makes me miserable. My hands will also turn red, and looks like a below-the-skin rash...so weird.

    My rheumy of many years says it is the lupus and she really does not know how to help. Even the drs. at the Mayo did not know what they could do for me.....so frustrating.

    My theory is that the lupus and or the fibromyalgia are attacking the small tissue in the hands, because it is like i can feel those little b------- eating away at my body.....

    so sorry you are experiencing this, i wish we had answers, but i have not been able to find any for years.
    Thank you too, Phyllis,

    That is exactly what it feels like, like tissue pain, sometimes burning, sometimes throbbing and sometimes like hundreds of needles. I have kind of figured, it was the lupus. Our "friend lupus" seems to think of something new to hit us with all the time. I hate that guy.lol

    Debbie

  9. #19
    Join Date
    Mar 2009
    Location
    Dallas, Tx
    Posts
    1,862
    Thanks
    145
    Thanked 413 Times in 339 Posts

    Default

    I can't believe I posted this over a month ago and here I am, still in pain. The last few days, I have developed something else in that hand. With some movements, I get this sensation and pain, that feels like when you pull a rubberband and let it go and it snaps you, kind of like an electrical shock, in the palm of my hand.
    By the way, my new rheumy's office called and canceled the appointment, because this doc does not acceppt my insurance. Now I have to start looking all over again. Living in a smaller town has it's benefits, but not when it comes to finding a good specialist. We have very few and they are so booked out.

    Debbie

  10. #20
    Join Date
    Dec 2008
    Location
    Phoenix, Arizona
    Posts
    1,013
    Thanks
    0
    Thanked 22 Times in 19 Posts

    Default

    I bet you are not only frustrated with your hand but also with your doctors. Just when you think you found one.....they call and cancel! I do have a question for you......does you insurance have a website???? I ask because normally they offer some services that can help you find a doctor that accepts their policies. It is a lot of work for us to do and can be emotionally exhausting! I really hope you not only find a doctor soon but are also able to finally get some relief from the constant pain you have been having. Good luck and I am thinking about you! I am sending you lots of gentle hugs to help you get through this
    As I grow to understand life less and less,
    I learn to love it more and more.

    Age 29, Lupus for last 7 years

    Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •