How frustrating! I bet you have had just about enough. I am so sorry you are going through this. One think you must remember is that you are your own advocate and if we do not push for answers, a lot of the time doctors will not look for the answers. Your symptoms are alarming and should be addressed. I would hate to hear that you are in the hospital because this was not addressed properly. I would try your primary doctor. They can run a whole panel and really look at what might be going on. Hopefully it is something easy to fix and you will feel better in no time at all! I will be thinking about you and please update us all on how this goes and what you find out!
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram