Results 1 to 7 of 7

Thread: Blood results from Hopkins...

  1. #1
    Join Date
    Sep 2008
    Location
    maryland
    Posts
    236
    Thanks
    0
    Thanked 4 Times in 4 Posts

    Default Blood results from Hopkins...

    Ok...I heard back from my dr and my ana was negative this time! Everything was normal except my CPK. Apparently it was elevated back in march as well but no one ever told me. A normal reading is between 50-100 and mine was 277 back in march and 352 this time with the tests done at hopkins. My dr wants to do more specialized antibody testing when I go back in june to check other parts of the cells since the ana only tests the cell nucleus. I also am getting treated either way when I go back but what these tests show will determine what type of treatment we will start. She said she can only say it is a pain syndrome at the moment because we dont have enough proof of whether it is even autoimmune or not. I will not just be treated with a narcotic which I am glad of. She said some people come to her like me with symptoms and non-specific tests and go on to develop lupus or something like it and some dont. So its watching and waiting some more :/ I am not really thrilled about this but what can i do? lol I just hope we can get something figured out soon. If anyone has been through this or has any comments etc please let me know! Oh and my muscle strength is fine so were not even sure if the CPK is signifying actual muscle damage or not. Hope everyone is well. *Hugs* -Brittanee
    *LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
    Plaquenil-200mg 2x/day
    Prednisone-7.5mg 1x/day
    Methotrexate- 2.5mg 4 pills 1x/week
    Keppra-750mg 2x/day
    Daily Vitamin-1x/day
    Folic Acid- 1mg 1x/day
    Protonix 40mg 1x/day
    Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
    Vit. D 800IU's 1x/day
    Lyrica- 75mg 1x/day
    Flonase 50mcg 2 sprays each 1x/day

    Wanna know my story, just ask!

    *Lord_Walters_Lady* <3

  2. #2
    Join Date
    Jan 2008
    Location
    Oklahoma, USA
    Posts
    347
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Oh, the diagnosis process can be so frustrating. Hang in there and take care of yourself.

    Jana
    Life is measured not by the breaths we take, but by the moments that take our breath away.

  3. #3
    Join Date
    Feb 2009
    Location
    TEXAS
    Posts
    413
    Thanks
    9
    Thanked 0 Times in 0 Posts

    Default

    Sorry, I have had negative anas constantly, but my crp, sed rates, rhuem factor, and platelets stay high. I am being treated for seronegative LUPUS last 2 and half years. I have atleast 6 relatives that either have Lupus, or ms. So, it runs in my family, wether the certain tests say what they think it should or not. Dont give up. My sister was told she was positive, and years later negative, so its posible, it can say negative even with it. Also I read, longterm steroid use can make test negative. I think thats my case now. Hang in there. Kathy
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  4. #4
    Join Date
    Apr 2009
    Posts
    838
    Blog Entries
    5
    Thanks
    8
    Thanked 24 Times in 22 Posts

    Default

    (((Hugs))))

    Hang in there.

    I'm assured by my intelligent, caring pcp that we do eventually get our diagnosis.

  5. #5
    Join Date
    Jan 2009
    Location
    Sylvania,Ohio
    Posts
    1,409
    Thanks
    79
    Thanked 70 Times in 58 Posts

    Default

    Hi Brittanee!!! Just want to let you know that im hanging right there with ya my friend Im going through that very same thing myself, you are not alone and please know that we are here for you!!!!!
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

  6. #6
    Join Date
    Dec 2007
    Location
    Edinburgh, Scotland
    Posts
    144
    Blog Entries
    1
    Thanks
    4
    Thanked 5 Times in 5 Posts

    Default

    ~leaves a whole bundle hugs~ Keep your chin up!
    I've always had negative ANA too.. in fact, the only level I've ever had as being abnormal is my ESR level (which this time was only very slightly raised at 22 when I think normal is up to 22) but my Dr decided to treat me with Plaqunil (spelling?) and as it has worked a charm I got a diagnosis of SLE with mostly negaitive blood work.
    Numpty:- (num-p-tee) dialect, chiefly Scot, ~n. 1. a bumbling fool: one who is intellectually challenged. 2. widely known in Scotland as an MSP (Member of Scottish Parliament).

  7. #7
    Join Date
    May 2009
    Location
    Chicago IL
    Posts
    27
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hang in there..just don't give up or feel like it'll never happen because you WILL get a
    straight answer!

    My Rheumy had told me for 4 years that I was "lupusie" and that I didn't have enough
    critera to be diagnosed with lupus and then finally last year I was offically diagnosed with
    SLE...

    I hope the treatment plan they have for you works and I hope you're feeling good!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •