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Thread: New to the website...Not to Lupus

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    Cool New to the website...Not to Lupus



    Hi everyone! I'm new to the site but not to Lupus. I first started getting symptoms in 2004 when I developed kidney disease. I was finally officially diagnosed last year. Besides kidney disease and Lupus I also have Sjogrins Disease and Arthritis. I still to this day have not met anyone else who is going through what I go through everyday and that really understands. It's hard to stay positive by myself all the time so I decided to join the website.


    Because of the amount of pain I am in I am currently not able to work or to continue my education so it makes things alot harder on myself. But I haven't given up yet! I am looking forward to meeting and talking to all of you.

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    Default hi

    HI K,

    And a very big welcome to you! I am so glad you joined us as having noone to talk to is very stressful.We will all help you always.Ask anything.What one member doesnt know the next one will.I so understand being unable to work,socialise,go out...the lot.When you get so sick.....pain takes over....so make sure you take all the pain killers given to you like me....does help,but makes you sleepy in the day....and many members here suffer with insomnia,so sometimes can feel like no escape.So we meet up in the social groups...have fun,chat.Just click on community then social group.Hope we can make a difference to your life.Everyone here suffer allot,but we all help each other and chat about everything.So welcome!!

    lots of love
    Amanda.xxxxxxxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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    Thank you so much..you have absolutely no idea how much that means to me!

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    Hi K!
    Welcome to the site and I have to say you have come to the right place for understanding on what you go through. Everyone on here is supportive and will chime in on anything you wish to talk about. I do hope your pain subsides as that is the worse to deal with along with everything else in life.
    Welcome again!

  5. #5
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hello K.Grams,

    I'm Rob, and I was diagnosed with SLE five years ago. I think you'll find a bunch of understanding folks here, as well as some excellent advice on living with this thing called Lupus. It already sounds like you have a great attitude going despite it all. That's a huge step in the right direction. Welcome to our group. Please make yourself at home here!

    Rob

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    Default Hello K

    So glad you found us. There is always kind word and a listening ear on this forum. And there is always someone who understands exactly what you are going through. Don't be a stranger. When you need to get away from it all, play some games on the arcade.

    I am sorry for your struggles. I will pray tomorrow finds you feeling better.

    Jana
    Life is measured not by the breaths we take, but by the moments that take our breath away.

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    hi k,

    welcome to our family of the sky. you will find so many people here who know exactly what you are going through. You will always find a sympathetic ear, and whenever possible, we will help you educate yourself on life with lupus.

    Ask any questions, and join in on any threads...i look forward to learning more about you.
    Phyllis

    share a smile today

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    Hi Rob..
    Thank you so much for the warm welcome. I try to stay as positive as possible and as you know thats hard with all of SLE's ups and downs but as time goes on
    and flares subside I remember why I don't give up..life is beautiful...I am very excited to have actually found somewhere that I can talk to people who go through the same things I do and that I am truly not alone in this & I do look forward to getting to know more about you & your illness.


    Katlyn

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    Thank you so much Pearl & Dreamer it feels really good to know you guys care and I too will pray for both of your health. I look forward to getting to know you both better & to get to play some games!

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    Hey K!!

    Good for you for having a good outlook. I know all-too well the costs of having Lupus...I haven't worked in three years. I miss my job so much! Some days I can barely take care of my little girl...but I just give life the finger and go ahead with my business. I always hope for the best, because I've been through the worst! Let's tame the wolf!

    Can't wait to get to know you, too!!
    Blessings,
    Carrie


    "I feel like I'm diagonally parked in a parallel universe."

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