Hey all...sorry I didn't respond before now. In-laws are en route from NJ, so I've been cleaning like crazy.
Had a long LONG talk with Bill. It went very well...better than expected. I told him that I understood his frustration...but to try and hobble a mile in my shoes. To spend a day struggling to stand upright, with aching joints, barely able to stay awake, a mind that won't focus...and those are the GOOD days. I acknowledged his feelings, and asked that he do the same for me. He did concede that lately, my "good days" have been more numerous than my "bad days" (which I chalk up to a final understanding thanks to my long-overdue diagnosis)...and that he would do all that I can to help. He actually said, "I thought that saying 'I'm sorry' when you were first diagnosed would let you know how I feel about all this."
But we're going to work more on our communication, and I gave him "permission" to be frustrated...I mean, I know it's going to happen for the both of us...but I told him that he needed to find a new way to deal with it. Projecting his frustration on me was counter-productive, actually made me WORSE (he did not know that stress can contribute to my symptoms), and that I would not tolerate it any more. Flat-out.
So far, so good. We will see how things go. I'm willing to take any crumb I can get!!
Thank you ALL for your stories and support. It's so wonderful knowing that I have a place to vent where everyone "knows my name"...in more ways than one. Y'all are the best!! xoxoxo
"I feel like I'm diagonally parked in a parallel universe."