Page 1 of 2 12 LastLast
Results 1 to 10 of 13

Thread: Hi! Did your lupus started with a big event in your life?

  1. #1
    Join Date
    Jun 2005
    Location
    London, UK
    Posts
    10
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Hi! Did your lupus started with a big event in your life?

    I believe my lupus was triggered by very invasive surgery for breast cancer at the same time I lost my job (as a single mother). Sounds tragic but things were okay, even with a year of immunotherapy to clear up some Hepatitis C. During the immunotherapy, I had horrible infections and reactions. We now pretty much believe the extra reactions were due to SLE and I can track the fever, fatigue and joint pain to just after the surgery.

    Did anyone else find that Lupus appeared after a major emotional or physical event?

    Just curious, please excuse if I haven't been perfect in this message as am rather new to this.

  2. #2
    Join Date
    May 2005
    Posts
    43
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    The earliest symptom I can remember is pain in my wrists which I thought was caused by repetetive stress working on a line in a factory. I still believe that it affected my wrists. I haven't been officially diagnosed though (don't like doctors).

    I do have sunlight senstivity and rash from it. I have joint/ tendon pain in my feet/ ankles as well as wrists. I have high blood pressure, reynaud's phenomenon, itchy skin, slight swelling in joints, and I'm lupie in the head.

  3. #3
    Join Date
    Mar 2005
    Posts
    36
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hi LaLondon,

    Sorry to hear about your difficult time with surgery / job loss.
    I have experianced rheumatic problems since early childhood (doc said they were growing pains, makes me so mad now when i think of it ) then after a whole batch of family problems came upon me 2 years ago, my health went downhill from there. I was so ill everyday, I was soon after diagnosed. So basically in relation to your question I guess you can say stress triggered my lupus to be how it is today.

    take care,

    Carly

  4. #4
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
    Join Date
    Nov 2001
    Location
    Victorville, California
    Posts
    7,749
    Blog Entries
    9
    Thanks
    1,610
    Thanked 926 Times in 589 Posts

    Default

    Hi LaLondon;
    No one really knows what causes Lupus - Doctors and researchers know quite a bit about the changes in the bodies of lupus patients, but the cause is a mystery. Lupus seems to be triggered in unknown ways. Not everyone with a tendency toward lupus will develop the disease. Researchers think some of the triggers that set off lupus may be infections, stress, diet, and toxins, including some kinds of prescription drugs. These triggers may also help explain why lupus has a cycle of flare-ups and remissions.
    Personally, I believe that my Lupus became active (I say that because I think that I suffered symptoms, from as early as High School, before I was diagnosed in my 30's) because of a major traumatic event in my life that lasted for months and months. That even caused unrelentless stress which, in turn, activated my Lupus!!

    Saysusie

  5. #5
    Join Date
    Oct 2004
    Location
    Illinois
    Posts
    955
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    I agree with the others. I may have had somesymptoms earlier, but I think some ongoing heavy stress finally triggered or tripped the balance. I'm now larning to deal with stress better (that's a day by day thing) and learning how to live healthily (relatively) and comfortably with my condition.

    Sun sensitivity is the thing I'm really learning to deal with this summer, as I'm learning more and more that it is a trigger. In fact, I have a load of long sleeved shirts in the washer right now - with Rit SunGuard. I'm interested in seeing how that will help. As it is, I wear sunscreen under the shirt sleeves, and will continue ot do that.

    Welcom to the group!

  6. #6
    Join Date
    Jun 2005
    Location
    London, UK
    Posts
    10
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Thank you for your replies:)

    I know that it doesn't really matter but I was so curious about the onset and timing. This board has already helped me so if SaysSusie or any of the many other people who have posted and replied are out there -- thank you VERY much.

  7. #7
    Join Date
    Jul 2005
    Location
    connecticut
    Posts
    3
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Re: Hi! Did your lupus started with a big event in your lif

    Quote Originally Posted by LaLondon
    I believe my lupus was triggered by very invasive surgery for breast cancer at the same time I lost my job (as a single mother). Sounds tragic but things were okay, even with a year of immunotherapy to clear up some Hepatitis C. During the immunotherapy, I had horrible infections and reactions. We now pretty much believe the extra reactions were due to SLE and I can track the fever, fatigue and joint pain to just after the surgery.

    Did anyone else find that Lupus appeared after a major emotional or physical event?

    Just curious, please excuse if I haven't been perfect in this message as am rather new to this.

    That is one of the known causes for an outbreak to occur... stress... or anxiety... growing up i've had extreme emotional and physical problems which all made my health very unstable, and i too heard that infamous "its all in your head"... as a 16 year old girl, you wouldn't expect that i go through stress, but my family causes all of it, so i get out of the house as often as possible... well i hope things are getting better for you

  8. #8
    Join Date
    Jun 2005
    Location
    London, UK
    Posts
    10
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Things are fine

    I hear of so many stories on this bulletin board. It helps, and I am heartened that, even though the stories are much more difficult than mine, these people are sharing and growing.

    I am a very pragmatic sort of person but have come to believe that it is very important to grow as much as possible through challenge.

    You sound like you have had plenty in your short life. Please know that probably everyone on this forum are here to support you the same way you have come out and supported me. In spite of the difficult circumstances, my life is amazing because of my son and family and friends. Do you find the same?

    I am writing this from London, where there have been quite a few bombs and deaths and injuries today. Grab what you have of life and run with it!

    Love,
    The person who posts as Lalondon

    PS Thank you so much for your support.

  9. #9
    Join Date
    Oct 2005
    Location
    portsmouth, virginia
    Posts
    9
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Hello
    I noticed that when my dad died three years ago oct 8, 05, that I began to lose weight (80 lbs), had a fever, serious night sweats so bad that I had to change my sheets every day, my whole body ached all day every day, I couldn't eat any thing 'cause it would come back, I got to the place I could not walk w/o help and began having serious chest pains etc. The Drs. said that I was depressed because of the lose of my dad, but I contrary to popular belief, was very happy when daddy passed because he had been so sick the last four years of his life. Strangely enough, the same symptoms I had, my dad had over his last years and I firmly believe that my dad had lupus and it just hadn't been diagnosed before he passed. So I do believe that tramatic things or stress causes lupus to flare up.
    I have heard people talk about remission but for 3 years the disease has been raging but I have gotten a handle on it. Take care of yourself and don't live your life based on what the experts say because they are looking at your situation from the outside but you have to do what's best for you. :rainbow1:
    Blessed in VA

  10. #10
    Join Date
    Oct 2005
    Location
    Oregon
    Posts
    12
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Curious here...as a family nudist (aanr.com) I have not yet experienced sun sensitivity. What are the symtoms of sun sensitivity?

    Shirley

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •