Results 1 to 9 of 9

Thread: Vitamins/Supplements?

  1. #1
    Join Date
    May 2009
    Location
    Georgia
    Posts
    167
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Vitamins/Supplements?

    Hello all.

    Having been recently diagnosed with SLE after YEARS of problems and symptoms, I'm jumping into maintaining myself like crazy. I've quit smoking, don't drink anymore (which I rarely did to start with), am working on lowering my stress...all that good stuff.

    My Aunt also has SLE, and she claims that vitamins and supplements (in addition to her meds) do more for her than just the meds alone. She is taking:

    Magnesium
    Fish Oil
    B-Complex
    Calcium
    Glucosamine
    Chondroitin
    Potassium
    Zinc

    I went out and bought all of the above and started taking them (along with a daily multivitamin) as soon as I was diagnosed. I've actually noticed some improvement in the last few weeks...don't know if it's wishful thinking, power of the mind, or some of the other lifestyle changes I've made. Either way, it's a good feeling.

    Does anyone else use supplements to help control their Lupus? What are your stories? My rheumatologist said that he was all for anything I could find to help me along (I'm just on Clinoril at the moment...am trying to hold off on the big drugs as long as I can)...and he's all for this route of treatment. I'd love some input from y'all!!

    Thanks,
    Carrie

  2. #2
    Join Date
    Apr 2008
    Location
    Klamath Falls Oregon
    Posts
    291
    Thanks
    0
    Thanked 10 Times in 7 Posts

    Default

    carrie
    here is a list of all that i am taking, so much going on i am not sure what works for sure but in my mind i feel it's the correct course for me and i provide this list updated to my rheumy every visit. hope this helps.


    Medication;
    Cymbalta 60mg one tablet in morning
    Hydrochlorot 25mg one tablet in morning
    Aspirin 81mg one tablet one time daily
    Amlodipine 10mg one tablet in morning
    Quinacrine 50mg one capsule daily
    Hydroxychlor 200mg one tablet once daily
    Prednisone 20mg one tablet twice daily
    Amoxicillin 500mg four capsules one hour prior to dental work

    VITAMINS;

    B-complex 1 tab one time daily
    E 400iu one time daily
    Folic Acid 800mcg one time daily
    Multivitamin 1 tab one time daily
    Vitamin C 500mg one caplet 2 times daily
    Glucosamine 500 mg one caplet two times daily
    Chondroitin 400 mg combined in caplet with Glucosamine
    Celery seed 1 tsp twice daily when gouty
    Calcium-Magnesium and Zinc 1000mg - 400mg-15mg two times daily
    Fish Oil 1000mg with 300mg Omega-3 fatty acids 2-3 times daily
    Cod Liver Oil one tsp. every morning
    Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our tribulations, that we may be able to comfort those who are in any trouble, with the comfort wich we ourselves are comforted by God. 2 Corinthians 1:3

  3. #3
    Join Date
    May 2007
    Location
    Seattle, Washington, USA
    Posts
    3,002
    Thanks
    256
    Thanked 148 Times in 79 Posts

    Default

    Hi Carrie....

    I supplement with..

    Each day...
    Fish Oil 2400mg
    Super B-Complex
    Iron 65mg
    Deplin..prescription type of Folic Acid...

    Enjoy this day..I am.
    Love,
    Oluwa
    I have Lupus. So *^#@! what.

  4. #4
    Join Date
    Feb 2009
    Location
    essex, england
    Posts
    581
    Blog Entries
    1
    Thanks
    28
    Thanked 15 Times in 15 Posts

    Default

    what a great thread

    i already take as well as meds
    vitiam c + zinc for immuine system
    ginko for short term memory
    calcium + d for bones ( prescribed by doc cause taking prednisolone)

    but i am also going to look in to other you guys mentioned thanks xx

  5. #5
    Join Date
    Dec 2008
    Location
    Atlanta
    Posts
    3,115
    Blog Entries
    1
    Thanks
    27
    Thanked 80 Times in 69 Posts

    Default

    hi carrie,

    my rheumy encourages adding viatmins to the daily list of meds.

    I take:

    folic acid - for hair (and something else, but can't remember right now)
    vitamin B injection (1 mm each week)
    calcium with vit. d
    omega 3 - prescription strength - not fish oil
    aspirin

    i take these along with plaquenil, methotrexate, and various heart meds. for heart issues unrelated to lupus.
    Phyllis

    share a smile today

  6. #6
    Join Date
    May 2009
    Location
    Melbourne, Australia
    Posts
    131
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    I also take vitamins every day..
    1 daily multivitamin,
    2 concentrated fruit & vegetable tablets
    2 complex for hair skin & nails tablets
    2 vitamin c & echinacea tablets...

    I might look into the omega 3 soon...
    *~* Monique *~*

  7. #7
    Join Date
    May 2009
    Location
    NJ
    Posts
    305
    Thanks
    2
    Thanked 17 Times in 15 Posts

    Default

    I take similar vitamins as of recent and also eat pineapple everyday..it is an anti inflammatory naturally. I too, either had relief by coincidence ,or it actually helped?? I have tremendous drug sensitivities so I am sooo limited..I am in the early diagnosis stage so I am not on heavy duty meds..nor plan to be. I will do steroids if I need to. I have had them before for allergic reactions and such.

  8. #8
    Join Date
    Apr 2009
    Location
    Texas
    Posts
    208
    Blog Entries
    13
    Thanks
    0
    Thanked 3 Times in 3 Posts

    Default

    In addition to the plaquenil, I am on
    2 fish oil horse pills and
    1 calcium/vitamin D horse pill
    I guess they help, they certainly aren't hurting anything.
    I try not to over do vitamins because there is such thing as too much of a good thing.
    I'd rather be hated for who I am, than loved for someone I'm not.

  9. #9
    Join Date
    May 2009
    Location
    Georgia
    Posts
    167
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    I can tell you ALL that being on the supplements that I've been on have made a MAJOR MAJOR difference!! I haven't felt this good in years!!
    Blessings,
    Carrie


    "I feel like I'm diagonally parked in a parallel universe."

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •