I am so glad to hear that you are finally getting some definite answers. I'm sorry that you have to suffer with any type of illness at all, but I know that having a name for what is ailing you can relieve some of your stress.
You are most welcome to remain a part of our family here, even if you do not have Lupus. Behçet's disease is also an autoimmune disease that results from damage to blood vessels throughout the body, particularly the veins.
Behcet's disease, like lupus, causes chronic inflammation in blood vessels throughout the body. This inflammation leads to many symptoms similar to the symptoms of Lupus, such as: mouth sores, skin rashes and lesions, and genital sores. Also, like Lupus, the symptoms can be different for each person and the symptoms can come and go on their own.
I hope that treatment will start soon and that it relieves your symptoms. Yes, please do keep us posted.
Peace and Blessings
Look For The Good and Praise It!