1- Whats your name?
2-How old are you currently?
3-How old were you when you were diagnosed?
4-How has your life changed since diagnosed?
I can't work a the jobs I use to work at. So not working. Hope to start working for myself. I can no longer walk. Have a lot of doctors. Take a lot of meds. Pay a lot of medical bills, In a lot of pain.
5-What meds did you start on?
6-What meds are you currently taking?
Fluoxetine Mobic(Naproxen), Plaqunel, Methyprednisone Levothyroxine, Furosemide, Protonix, Potassium, Vit C, Multi Vit,
7-Do friends treat you differently knowing that you have Lupus?
Yes. Some don't like it when I don't feel like doing things. Some tell me how they think I feel instead of asking me how I feel.
8-Do family members treat you differently?
They get tried of hearing me complain when I feel bad. They don't like it when I forget things I used to remember. They don't like it that I don't aways get thing done.
9-What symptoms made you think something was wrong?
Joint pain, fever, fatigue, hair loss, thrush.
10-How long did it take for you to be fully diagnosed?
It took years. But after I when I finally got a rheumy it didn't it take long after that.
11-How often do you visit the doctor?
I go to a lot of doctors. So I spend a lot of time sitting in the exam rooms.
Some times I go every month Some every 3 months. at each doctor.
12-What specific doctors do you visit?
Primary care doctor
13-Has Lupus affected you at all financially?
My ins. doesn't hardy play anything. So we have a hard time paying all the bills. Meds also make it hard. We make agreement with the Hospital. Doctor usually don't make agreements and that make it harder
14-What about mentally?
I have depression, anxiety,
15-Has Lupus stopped you from doing what you wanted/want to do in life?
It stopped from having children because my reproductive system shut down, years before I knew I had lupus. Job, Walking.
But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint. Isaiah 40:31