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Thread: Hello from Middle Tn!

  1. #1
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    Default Hello from Middle Tn!

    My name is Nicole (Niki) I am 39 and 9yrs ago my whole life changed. I was working and collapsed, woke up in the hospital, and was told I had a series of strokes. I was unable to walk on my own, and I asked the ultimate question........what caused me to have strokes at 30yrs old. This question would be asked after anything strange happened to me. The answer I got was, we are going to run some test and see. No family history of Lupus, just me. I went from specialist to specialist, all saying the same thing. 5yrs ago I walked into a Drs office at Vanderbilt Medical Center in Nashville, Tn The doc told me, I know you have heard this before, give me a chance, all sorts of tests later, he called me and said come to my office. I get there and he said, You have Lupus. I just sat there, I didnt know how to react. I had never actually gotten an answer before. Vasculitis caused the strokes, all the joint pain, all the cognitive problems, everything over the last 5yrs I had an answer. Lupus=No cure. What I had was real, it has a name!!! My doc worked with me and we started our game plan. Today, I am on Methotrexate once a week for the RA and Lupus. Side effects stink, but I only need pain meds maybe once or twice a month. I am super sun sensitive, so going outside is literally a pain, but I got out of mowing!!!!! lol. I have ALOT of cognitive problems, I would much rather have the pain back than have the cognitive problems. We all joke that when I have a "Mommy" moment my kids call me Dory LOL

    Enough about the Lupus...

    I have been married for 9yrs, in fact 9mo after we got married I had the strokes, he is the greatest guy ever. I have two kids from a previous marriage, my son is 20 and my daughter is 17. We have two American Eskimo dogs, and 3 Ferrets. I haven't been able to go back to work, so I am a Domestic Goddess, and keep the homestead running smoothly. I make it a point to do something I want to do everyday, because when I first got sick I couldnt do anything at all. I do something with my kids when they are free, and my husband and I have a date night. As odd as this may sound but I am glad that Lupus came in my life. Everyone is always so busy going here and there, and life just passes them by. I got the opportunity to slow my life down, and take nothing for granted anymore. I've been given the opportunity to spend time with my kids and husband, and I do things I want to do, and I enjoy every minute of it, because you never know what can happen or when.

    Hope everyone is having a "Good" day

    Hugs
    Nicole

  2. #2
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    Default hi

    Hi Nicole and welcome to our family. Wow what a story hey,you've been threw it! But so understand how now your life is slower and you appreciate life and take it all in.Yet i know also....others dont and take every thing for granted dont they! Glad you found us!

    love
    Angel.xxxxxxxxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  3. #3
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    First...Welcome Niki!
    Your are so positive and I hope to one day have children and a great guy in my life. Your story is both sad and inspirational. You have a wonderful attitude. Keep living your life like it's golden!
    You have a wonderful day as well!

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    hi niki,

    first, i want to welcome you to our group....i can tell you will be a wonderful asset to our efforts. Your positive attitude will really help when people are struggling with lupus symptoms and depression.

    thank you for a different perspective....and i agree 100%, but had never thought of it that way.....again, thanks.

    i also use methotrexate, as do several other members....i hate the day after, but then i have a few good days that i cherish. You may have noticed the thread in "Lauri's Lounge" titled "its M day". several of us check on each other and we always share a little bit of chocolate as a reward for our braveness. So, come and join us, and enjoy some chocolate.
    Last edited by mountaindreamer; 04-23-2009 at 05:37 PM.
    Phyllis

    share a smile today

  5. #5
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    I just wanted to welcome you. Just come in and make yourself at home.
    But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint. Isaiah 40:31

    Take Care,
    Becky

  6. #6
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    Default

    What an inspirational story. Welcome to the forum. Your optimism will be a gift to so many.

    Wishing you well.

    Jana
    Life is measured not by the breaths we take, but by the moments that take our breath away.

  7. #7
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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Default

    Welcome to our family, Nicole
    I am so glad that you are here. I am happier to hear that your Lupus is pretty much under control and that you have a supportive husband and an understanding doctor. Not having those are, sometimes, the biggest stressors that we face!!
    You will find that this family is heaping with understanding, informative, caring and supportive people! You are never alone when you are with us.

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

  8. #8
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    Default Welcome

    Hi Niki.
    I am rather new her myself. I am as of yet not officially diagnosed but that is just a formality. I was raised in Nashville TN. That was from the ages of 3-17. Not really raised, but grew up. (My parents were drug dealers). When I was 17 I moved to Cleveland Ohio. At age 25 and pregnant with my third (live birth) child, my lung Doctor sent me to a warm, dry climate. So, believe it or not, here I sit in sunny Tucson Arizona. If I am not mistaken, I do believe, that I am allergic...to the sun. I am stuck between a damp and a dry place. If I go back to TN or OH my lungs would give out within a matter of a couple of years. Funny, even with all the sun and all the vitamin D they are giving me (200,000 IU per week) my level is still 12.
    I am so happy you are doing so well and can stay home to tend to the homestead. You really should write a book. I am still working about 35 hours a week and taking 4 college courses. I only wish I could quit because I feel so lousy. Probably if I felt good I would not hate school and my job. I love the kids and families and the school work is challenging but every day I wish I could just stay home in bed.
    I recommend that you enjoy it but don't waste it!
    I hope to write better posts like yours that are uplifting and not so depressing.

    Kathleen

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