Hello Vancouver and Welcome
No need to feel nervous here...everyone is welcome. We actually have quite a few members here who are, as yet, undiagnosed. We call it 'in limbo'. And we all understand how extremely frustrating it is.
You've found a good place to learn, ask questions, and be supported by a group of very compassionate, understanding people. So many of us showed up here because we were scared and confused and lonely, and trying to figure out what all of our symptoms mean. So let me assure you that you're in the right place. We even have a few wonderful members who thought they had Lupus, only to be diagnosed with something different, but they have stuck around because of the supportive environment.
I'm Lori, and I'm a 46 year old woman that has lived with Lupus for 27 years. I'm married and have 2 children....a son, 16 and a daughter, 12. I thought I might mention that quite a few women started having their first symptoms after a pregnancy. I happened to be in a remission when I went through both of my pregnancies.
I'm so sorry for all that you've been through...you've really been having a tough time. Sending you caring, gentle hugs of understanding. Having all of this come on you, and not having any answers as to what's going on can be very frustrating and scary. As you've probably been reading on here, auto-immune diseases can cause numerous symptoms, and each and every person's case is different...their own. And you've probably also been reading that sometimes it can take quite awhile to get to a diagnosis. That can mean lots of random symptoms, lots of doctor visits, and lots of tests. And many times, lots of waiting time to get answers.
What type of doctor are you seeing? A Rheumatologist? The mouth sores, fevers that come and go, sore throats are something that many of us suffer with...but when you say your heart is hurting. That concerns me. Do you mean actual pain in the heart, or does it hurt in your chest when you breathe? Does it feel like someone's sitting on your chest, like it's hard to take a deep breath? Or is it a sharp stabbing pain in your heart area? With Lupus, you can get Pericarditis, which is inflammation of the lining, or sac, around the heart. And you can also get Pleurisy, an inflammation of the sac lining around your lungs. Both can be quite painful and serious, is left untreated. If your pain gets worse this weekend, you should definitely call your doctor.
You've already taken the right step in coming here...this is the place where many of us deal with the uncertainty and the scared feelings. It helps so much to be able to ask your questions in a place where there's no judging, only true understanding. We all help each other get through the tough times and the wait between the doctor visits and tests. And when you have lab tests, we have a few very knowledgeable members who are great at helping us understand the meaning of them. One of these ladies is Saysusie, who's one of our Moderators here, and the one that started this site. I know she'll be along very soon to welcome you and help you feel at home. And I wanted to add that you are right in feeling that you know your body best, and that somehow all your symptoms are related. They sure don't feel like random symptoms do they?
Please stick around and let us help answer your questions and help you feel like you're not so alone in this. I'm glad you found us.