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Thread: Not Myself

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Default Not Myself

    Hi everyone,

    I seem to be in the middle of a rather weird flare. Bad fog combined with a total disconnect between my brain, mouth, and fingers. And, an odd sort of depression like I've never felt before. It's hard to explain, but I don't think it's caused by any sort of stress or emotional reason. It came on suddenly with the flare and brain fog. In other words, I know I shouldn't be depressed about anything in my life right now, but I am. I'm used to having regular flares, and I don't necessarily get depressed because of them. I'm kind of used to it, or so I thought. Anyway, If I come across kind of weird in posts or messages, I apologize. I'm just not myself right now. I made an an appointment with my neurologist ahead of my usual monthly visit. I see him Monday. Half the time I don't know if these things are caused by Lupus, or by MS. Don't know if the neuro can really do anything, but I guess it makes me feel better to know I'm at least going to see someone about this. Anyway, thanks for listening.

    Rob

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    hey mate...
    all I can say is.....:

    CHIN UP.....

    Hope u feel better soon and u get over this weird flare....

    Take care mate....
    The worse the bad times are the more we appreciate the good things in life..

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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    He Rob;
    First, you have not come across weird in any of your posts. I agree with you that it may be CNS involvement due to you Lupus AND your MS. So, try not to fret too much about the low tide in your mood right now. You may, also, need to have some meds adjusted.
    Whatever the case, just know that so many of us have been there...done that! You are not alone when you have these unexplained low tides. I understand and want you to know that I am here for you!

    Always
    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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    Hey Rob

    Soz to hear you feeling like that, i get them lasts a few days, i have no reason to be feelin like it as things go well but i just feel so emotional (not nessercerily miserable) just upset, angry or whatever, is odd how it affects ya head like i know, i not come accross any "ouch" posts but if i do i dont really look at them like anything, coz i know the way i feel most days and assume everyone feeling the same,

    Keep it real my friend
    all my love
    Jane
    xxx
    **The next or $ raised WILL be the cure for LUPUS**



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    Sorry hang in there. Hope Doctor can help. I've been feeling really bad lately too. Hope warmer weather will help both of us.

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    I hope you feel better soon. That is exactly I felt a year ago. Lupus does something in the brain that kind of trigger like depression even you do not have anything stressful going on. I have not completely recovered. it was so weird and very hard to explain that what is going on. Have you ever looked into YOGA?

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    Hay rob sorry to hear your feeling this at mo!!! i know exactly what you mean i think we all must go throu those phases hope you come thou other end soon huge hugs H xx

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    Hi Rob...

    You never come across as anything but helpful and caring. Oh, and very intelligent. No worries...we all understand the struggle to get our heads together and put words in a post in spite of brain fog and depression.

    I truly understand your frustration...when you get used to the forms of depression and the way they affect you...what brings them on...how they feel, etc. it can make you question what the heck is going on, when that particular symptom comes out of nowhere and just feels different this time. It's like you had it figured out and partly understood....and then it changes on you. Makes you take 2 steps backward and have to try to figure things out yet again. There is frustration in that.

    And there is frustration in a disease that is constantly changing things up on us. There is never really a time that we are sure of ourselves with this illness...sure that we understand what's going on with us and our bodies. And I hate that about it. I hate the guessing game we play all the time. Leaves me with a very unsettled, unsure of myself feeling and I've never liked that part of this crappy illness. And, my friend, you've got another crappy one too. MS. That one throws the same curveball at you. So, the way I look at it, you're getting a double whammy compared to the rest of us, when it comes to trying to sort out what's causing what.

    Glad to know your Neurologist can work you in sooner, and I'll be hoping he can help you sort this out. While you're waiting till Monday, go ahead and lean on us. I know you're a big guy, but if you lean on ALL of us together, we'll hold you up and get you through. That's OUR Lupus Specialty!

    Many hugs to you....

    Fondly,

    Lori

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    hi rob,

    i agree with all of my predecessors, your posts are always compassionate, supportive and helpful...so please do not worry about anything around here.

    do you have a pretty good deal going with your neuro dr....i am so glad he could get you in on Monday...please take care of yourself until then, and by all means, our shoulders as a group are pretty strong.
    Phyllis

    share a smile today

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    AWWWW, so sorry for you're ooky feelings. I too understand completely. I get this alot Rob, so dont feel funny about it. And i agree with the others, you are GREAT in so many ways and we all understand because we all have our loopie moments too LOL Im sorry it feels different this time, i know this can be scary. Please keep us informed and GOOD LUCK MY FRIEND
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

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