New here not to lupus
Cellcept is a powerful imniosuppressent which will cause extreme fatigue.
Cellcept will stop a flare, usually. I am worried about why the doc chose to use such an extreme drug so quickly in treatment. What are your symptoms?
We all understand that feeling of taking the trash to the street just might actually cause your death. Have a talk with your son and ask your friends and family for help.
I found that most friends understand and help either by taking my child or coming over for a cleaning party. Also they started a flare sitting program where they take her so I can rest.
The meds, depending on what they give you will help with the pain and energy. You will always need more sleep than others though.
Honestly hon the hardest part is usually diagnosis. Once you have that you usually stop being reffered to as "that crazy lady" by the docs office.
If not switch docs. One who doesn't believe you can cause irreversible damage.
If you ever need a sounding board either of you just get ahold of me. I've been diagnosed for 8 years now and know the ropes.
All the best, Betsy
There will be better days! If this is one cherish it.