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Thread: Are YOU in Pain Today?

  1. #1
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    Default Are YOU in Pain Today?

    Are You hurting terribly? Are You sick of hurting and just want it to stop? So many people on this site are suffering...hurting in places they never knew could hurt...and being worn down to nothing. And I just wanted to say to YOU, that I am very, very sorry. I wish I could make it stop.

    Sometimes I can almost feel Your pain...the activity on the site kind of slows down, there's a lull, and it feels like the misery is multiplying. And then one or two of you post and cry out for help. And it breaks my heart.

    I remember the horrible joint pains, that hurt so bad You can't make a fist, or get up from your bed, or walk by yourself to the bathroom. You just lay there trying not to move in fear of making it worse. I know how it feels when You want to give up...feel as if You can't take another second of it. When, even though You're all alone....You cry out loud and wish someone would hear and help make it stop. Sometimes I feel like I can hear Your collective cry of pain. And it breaks my heart.

    I am sorry for the ups and downs, the deep emotional toll this illness takes on You....for the 3 steps forward...only to fall back 10. I'm sorry this illness takes over Your brain sometimes and makes it hard to think straight...form a coherent thought...finish a sentence right...for that causes pain too. I'm sorry that You have an illness that attacks nearly every part of You until You want to give up....and then comes back to knock You down again.... Sometimes just when You've gained the courage to try and stand back up.

    I hope You know it's okay to have ALL the emotions that God gave us. He doesn't want us to bury our sadness, our anger, our misery, our hate for this disease. It's okay to feel those. They validate that You are Human. Allow yourself time to 'feel' what You need to feel and let it out when You need to. Go ahead and give yourself that hour, or day...or even a few days, if You need them, to feel sorry for yourself. That is also part of the process of chronic illness. It doesn't make You any less of a person.

    And I thought that because we all need our turn to vent...to get mad because we have Lupus and because it has changed our lives in so many ways, that I would start a thread where it is safe to share Your feelings....whatever they are. There is no judgement here in this thread, no setting of limits on how mad You can get...and no one to tell You to stop. You've found a safe place to let it out and empty Your soul of the pain. And please know that this is a thread for family and friends that are going through the suffering and pain of their loved ones with Lupus, as well.

    And because my heart breaks for You, I will be here to encourage You and help You pick up and go on. Remember....YOU are never alone in this!

    Fondly....and with Love in my heart for YOU,

    Lori

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    Default hi

    Oh Lori,

    What a lovely lady you are...Thank you for such a lovely thread.Sending you see saw hugs

    love
    Amanda.xxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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    Default

    THANK YOU LORI!!! Always there to help anyone who needs it! HUGS TO YA!!!!!!!!!!!
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

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    Thanks Lori, You say the things, I wish I could say!!! But when I do they come out wrong!!!!

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    Default

    beautiful,

    you spoke with such compassion that is obviously founded in experience. i wish none of us had to go through all that you listed, but at least we do have each other.

    thanks for the thread, i am sure it will get plenty of use.
    Phyllis

    share a smile today

  6. #6
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Default

    Thanks Lori,

    there's this song-And for someone to talk to, you'd give anything, go on and cry out loud because someone is listening. Cant remember who sings it. Thank you Lori.

    rob
    Last edited by rob; 04-15-2009 at 08:46 PM.

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    Smile

    You're Welcome.....Angel, Jeannette, Wrightrs, Phyllis, Rob....

    You are my friends and I hate that you suffer.

    Most Fondly...and always with Love in My Heart.....

    Lori

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    WE hate that YOU suffer too dear Lori. You are so kind and have a BIG HEART! I feel like you're our mom in a way Lori! Definately arent old enough and you definately dont look like you could be, but you have the mothers love going on! Unfortunately im estranged from my mom because of her drugs and alcoholism (along with other things as well), so its nice to have this feeling! THANK YOU!
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

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    Thank you, Jeannette....you don't know how much I needed to hear that today....

    Not feeling good...I'm going to lay down for awhile.

    I might just pop in here later and use this thread for myself....been holding things in too much lately.

    Sorry about your Mom. Sending you caring, *motherly* (even though I'm not old enough to be yours) HUGS.

    Love

    Lori

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    Default hi

    Oh Lori....sorry you feel not so good today.

    You always lift me up.You are always there for me.You are so special to many of us here and you help so many.You may froth around the mouth at times, but we get used to that
    But seriously, please know you mean the world to me.So im sending many hugs for you.....and imagine when you lie down...we are all there with you just stroking your hair to relax you and hopefully you will fall asleep.

    Lots of love
    Amanda.xxxxxxxxx
    Rooaarr!!!!
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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