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Thread: Ready to give up!

  1. #1
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    Angry Ready to give up!

    I am sooooooooo tired, and sick of everything! Ready to just give up! Between misdiagnosis and feeling horrible, and everything else I just want to go on vacation to laa laa land! Sorry just frustrated!!!!!!!!!!!!
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  2. #2
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    Default

    Head hugs...Talk it out with us, Kathy....what's going on.....it can help, chatting about details to put things back into perspective, regain footing and move forward.

    I dislike the stupid hole...I find if I don't find ways to manage my frustration, disappointments I fall in and my symptoms grow ten-fold...

    Love..hugs,
    Oluwa
    I have Lupus. So *^#@! what.

  3. #3
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    Angry

    Just frustrated! Been misdiagnosed 6-7 years with lyme, meanwhile getting worse! Seen rhuem who was wonderful and even though my ana was negative with my symptoms and my family history, treating for sle. Then I have new primary, who questions that diagnosis, and sends me for mri which has lesions on brain and refers me to neuro. who cant see me till 23rd! Mean while I have hallucinations (only while laying down!) and headache(only when laying down!) and I tell primary and he says to cut my prednisone in half, but I am in flare for atleast 4 months now and my crp is high, and my c3 complement is high(so this is inflamation!) I call my Rhuem and hes out of state, and his nurse said dont cut your dose you are not on a high enough dose to make you have pyschosis. Which I being a nurse for 17yrs know it cant! Ive had diarehea 10 to 11 times everyday last 2 years! I have bright red cheeks, and constant low grade fever, with joint hurting, bladder urgency,bowel urgency ect........ I am just tired of everything! Sorry! This is only 25% of it my thoughts a are not correlating, cant think cant talk right, dizzy, crybaby!
    Quote Originally Posted by Oluwa View Post
    Head hugs...Talk it out with us, Kathy....what's going on.....it can help, chatting about details to put things back into perspective, regain footing and move forward.

    I dislike the stupid hole...I find if I don't find ways to manage my frustration, disappointments I fall in and my symptoms grow ten-fold...

    Love..hugs,
    Oluwa
    Last edited by KATROACH1972; 04-14-2009 at 11:34 AM.
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  4. #4
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    Please don't give up. Up you have so many people that love you and count on you. Your family your children and us!!!!!

  5. #5
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    Thanks you ladies! i will not give up, just been very hard last few months! Hugs to u all
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  6. #6
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    Head hugs....Never apologize for being sick and talking about your woes. I understand your frustration, anger...blah feeling, wanting to give up...losing trusts in the doctors....

    It is okay to crack up...we can always put ourselves back together again...

    Right now just breathe in deep, hold and let it out slowly through your nose...one more time...

    Can you take a soak, find some quiet time...to bring your thoughts and mind to a calm...

    I don't know all your syndrome, diseases, medicines and etc....so, you know me, I toss ideas out there to help you gain footing because I feel being in control can help symptoms subside...

    Does your RheumBA have a doctor in partnership in his office...could you do a walk-in with him?

    Have you been tested for CNS vasculitis? Is that what they plan to rule out with your neuro? Maybe you should go to the ER....

    With constant diarrhea you maybe experiencing low sodium...that could cause hallucinations...or even Plaquenil...Hydroxychloroquine ..are you dosing with it. Plaquenil can cause diarrhea too....

    Have they tried other autoimmunesuppressant drugs to help surrender this SOS flare...clearly you need something?

    What has your gastro said about the diarrhea?

    I wish I could do more, but all I have is ideas, thoughts for you..head hugs...

    Prop yourself up in bed...turn the TV on low..draw the drapes..find a calm, say a prayer....say I can do this. Because our disease loves stress...it feeds it and it gets bigger (symptoms...)..

    "An ancient principle reminds us to look for salvation in the darkest, most painful parts of our lives. We emerge into the light not by denying our pain, but by walking out through it. The common turn of phrase we apply to this wonderful action of
    grace is: 'that was a blessing in disguise.'"


    Head hugs.
    Love,
    Oluwa
    I have Lupus. So *^#@! what.

  7. #7
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    Unhappy Thanks

    I am only on Prednisone, and two bp medicines. I was on Methetextrate for 7 months but discontinued it 5 weeks ago because had stomach flu, and my hair fell out more then usual! I had a test done for the for SLE, Sojournes, antiphospholipid all normal etc.. I have Sle as diagnosis on charts even though ana, negative. My Rhuem says he knows its autoimmune, but it may be my own disease, with no name. I havent complained about diarehea, just stay close to bathroom. The only test that have went up are my wbcs, platelets,mpvs, neutrophils,my sodium is low(but I eat salt?) C3 complement is 212mg suposed to be 83-184, my crp is 5.2mg, and 2weeks ago it was 0.30mg. normal is 0.0-3.2mg. I have a sister with ms, and one with Lupus, both diagnosed after I started getting sick. A neice just diagnosed few months ago with Lupus, and several cousins.(all with positive ANAs) I dont know if antibiotics for 7 years made me not show antibodies, or what. Who knows? Just want to know what i am really fighting, b4 it takes me out! Thanks again. I would love to relax but my 4yr old is sooo energetic! lol no naps, and stays up late! So I gotta tend to her so my hubby who works and my 3 other kiddos can sleep. Thanks bunches! hugs to you sweetie
    Last edited by KATROACH1972; 04-14-2009 at 12:52 PM.
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  8. #8
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    Default hi

    Oh my dear friend. Imagine....you may be so frustrated now and feel so alone.....now close those eyes.....do you feel it? That is the many hundreds of members here holding you up and sending you strength. I know life can be so very hard, but you keep fighting it.We will all help in some little way, but all together it will be a massive help. Its the 15th now, so time will come around very quick for your appointment.
    Sending you lots of love
    Angel.xxxxxxxxxxxxxxxxxxxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  9. #9
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    Red face thank u

    Thanks sweet friend! Sorry just a bad moment or 2 or 3 or 4! lol Hugs
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  10. #10
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    I'll be praying for you!!!!

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