hi lilanne (what a pretty name)
first let me welcome you to our group. you will find unlimited compassion and knowledge from the members.
how long have you been on plaquenil? it takes 4-6 months to get the best that it is going to. after that time, when i did not improve, my dr. started me on methotrexate (immune suppressant drug) to see if i could get some relief. this could take 3 months to do its thing. still in trial phase, so will see in a couple of months.
you are right, whenever new symptoms arise, we have to pursue the cause...however, i usually get the words "must be your lupus" because the tests always show nothing is wrong with the organ....oh well, i still have to check it out.
anyway, welcome, make yourself at home, we are here 24/7
we have several UK members....wish you all lived close to each other. we have two memvers who have met and are now personal as well as cyber space friends.