Help Please, Does this sound like lupus to you??
Hello, I new to this place. I came here to seek answers and make friends. I have not been diagnosed with lupus, but for all my research it seems to be the only thing that makes sence. The drs said I have different symptoms of different rhumatoid diseases and they would have to see me "go through it a few more times to be sure" HOW CRAZY! It sucks. But from the looks of it, allot of people on here are trying to figure this out for themselves too... so.. anyway.. here is my story. Its long, so if you want to take a minute to get a drink... or use the bathroom.. haha =).......
Im 28yr old female. Last year one week I started running fever of 104, and could not breath and had excruciating chest pain. After a week of suffering on the couch (because of no health insurance) I finally went. They found a massive pericardial effusion, severe anemia, and a moderate pneumonia. I had pericardial-centisis, (were they took the fluid from around my heart and drained it) and sat in ICU for a few days. Then I started running 104 fevers that would not break. I spent 19 days in the hospital, 300,000 in medical bills without insurance. Im fine for a few months, then I start getting pains, running fevers, and go back into the hospital. They find no heart issues this time, no inflamation markers, or strange blood work, only that im slightly anemic again. This goes on one more time with the same results.Fast forward two this year. I get the same pains in the chest, with new pain in the left side that is constant, dull and achy. A few times I have woken up screaming with sharp stabbing pains and my heart racing. Fast forward a few more months. Im at my new job. My knees start going berzerk, along with my other leg joints, and swell and turn cherry red, with blotches. I run mild fevers on and off and seem to have problems getting enough air (not like Im not breathing well, more like the air isn't working like it should) Under my arms feel like someone beat me with a baseball bat, very tender hurt to move. My left arm starts to develop a harsh sand-paper feeling area on it, with no color change. It will not go away, its not dry skin. The skin itself feels like sandpaper and its slowly growing in diameter. Every joint in my body pops and cracks when I move. I get what I think is some kind of HORRIBLE heat wave and then my chest and neck by my glands turns bright red and and I pee my pants a little. I go back to the hospital, with more chest pain, and they find a large soft tissue attenuation on or near my thymus. They said it could be thymic hyperplasia or a mass and want me to check for further testing but I dont have health insurance and I can not afford another battery of tests
As for my blood work,....My inflammation markers that are sensitive for my heart come back high, but there is no pericardial effusion this time. The chest pain continues. The Dr's said they would call me if anything was found....and I havent heard anything. Oh yeh,... and at some point in all this, I was partially color blind for about two weeks in one eye. Then it went back to normal. I have had **evey** test medicine offers in my state, besides bone marrow biopsy and the pill you swallow. I am at my wits end. I have a bipolar fiance to watch after who is not doing well and I can not do so this anymore. I need someone to help me. Also I noticed sometimes my stomack swells very quickly and even my little sister noticed it..it becomes tender when a little pressure is applied.. I have cravings for nothing but meat and potatoes and rice.. I am not interested in leafy greens, or pastas.
I often get a very sharp pain in my gut on the top left side.
I also get horrible stabbing pains right were the bone meets in my elbow and especially on my left leg's knee (even though the right leg is the one I blew out playing soccer)
Oh and one more thing, often when I wake up I see a HUGE dandelion like spider looking thing right above my face... and it does not go away right away. Sometimes it takes like 5 minutes.
In the last five months my mouth sheds ALL the skin in it, and it comes off in HUGE white slimy slabs, like Im a snake or something.
I am at my wits end here. I just dont know what it could be. I feel like this is rouining my life. I dont even know how to manage it because they dont even know what it is. Over the counter Anitinflamatories do not work anymore. Even with a slightly stronger medicine the hospital perscribed for me I can still feel the presure and dull ache in my chest at all times.
right now as I enter this I actually have a mild rash on my face that burns... i know that is called a butterfly rash,..but its not bad at all.
Im kind of scared that the mass has grown, as my chest pain is constant, and goes from dull and achy to intense, kind of like the feeling you get when you have a toothache.. except in your chest.
Does this resemble anyones experiances with lupus? DO you guys think that this is what it might be? I know no one is a dr around here.. but any advice, or help would be great. I dont have insurance, and was laid off, and will more then likely be loosing our home soon, so going to the dr is not an option, unless the pain gets to be to much to handle.
Thanks, and please forgive my crappy spelling=)
Last edited by graphicsgoddess; 03-29-2009 at 12:16 AM.
"I am what I am what I am. Period"