Wonderful idea!!!!!!!!!!!!!!!! Thank you so much for sharing those parts!!!!!! It has put a fire in me that will only be out out after I get that book!!!!!!!
As for the question......................I have to admit, I do try to pass off as being healthy. I don't believe this is a good thing, at least for me it isn't. By trying to pass as a healthy person I tend to push myself in order to keep up with others. This hurts my body and causes a lot of flares for me. Because this was affecting me so negatively I decided that I would speak openly about it and try not to hide my Lupus. All of my friends know about shot night and I get calls and text messages from them just checking on me and making sure that I am ok! I had so many doubts about people understanding and I have been pleasantly surprised!!!!
Working environment is a bit different. My two bosses knew and they ended up telling all of their family members, who just happen to work for the same company as me. It was a nightmare and so much drama was created from so many little things! I was sent home if I looked tired. I needed the money; therefore, I felt like I needed to hide it from them a lot of the time. They wouldn't give me new assignments due to added stress and wouldn't let me go out to clients because they worried about me getting sick. I know they meant well, but I just felt held back due to my Lupus! It was frustrating and I really hope I have some privacy when it comes to me Lupus where ever I end up next!
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram