wow, what a story. thank goodness your husband is by your side, and walking this path with you. many of us have had to let go of very fulfilling professions, and some are on disability. there is a thread in "lauri's lounge" where several of us told about our lives before lupus.
so sorry that you have gotten this diagnosis.. being cold (for no apparent reason) is so familiar, i get chilled to the bones, and just can't get warm. i keep open finger gloves close by, and wear whenever my fingers start to get cold. once the cold sets in, it just keeps getting worse. the pain is unbearable....i know, and i am sorry that you have to feel such pain.
what meds are you on. if you have started plaquenil, it often takes 5 or 6 months before it starts to help.. some people are able to control their disease with plaquenil, where others require so much more. hopefully, you will be one that needs only plaquenil.
lupus life is much easier to endure when you have loved ones at home, and when people from this forum are around to walk with you.
good luck, stay with us,,,,you will be glad.