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  1. #1
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    Default New

    Hi everyone,
    I am new to this forum, i belong to another one assciated with the Lupus
    on another site, but alot of them are in the UK and their meds and other problems and solving them are out there for me, so glad i found this one so
    i will know what you are talking about..
    I have had SLE for about 9 years and my rhumey is in Birmingham Al. at UAb
    I am on Methotrexate inj. Plaqunail, Prednisone,Zoloft, Klonipin, Neurontion,
    and several more, plus i am in a study for a new drug they are probably
    going to develop, that has shown alot of promise, i finish that in May and go
    on a TRUE maintance dosage (Can't wait).
    Anyway that's a little about me, hope to talk to alto of you in the future.
    Have a great day
    Pam

  2. #2
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    Default hi

    Hi PAm
    I just joined also and Iam finding that its so far so good here.
    Sounds like you have quite a list of meds. I was curious what the mexa one is for. I have herd it mentioned before and don't know what it is.
    Pam

  3. #3
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    Default

    I guess it was metho...
    Pam

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    Default

    hey bamagirl,

    i am in atlanta but was raised in tuscaloosa....family is still there. where are you? i would be interested in learning more about the study that you have been participating in.

    welcome, hope you can learn from the members, and i look forward to learning from you.


    Pamjw, methotrexate is an immune-suppresent drug. i believe it is similar to imuron. i am scheduled to start it next week.
    Phyllis

    share a smile today

  5. #5
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    Default

    Welcome aboard! You can't find a better forum than this group of lupies!

  6. #6
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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Default

    Hi Pan;
    Welcome to our family. I hope that we are able to give you insight, advice and information that you can better relate to. Everyone here is kind, supportive, and informative. I hope that you will like it here and that you decide to stay for a while

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

  7. #7
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    Default

    hi pam and welcome!

    what is the new drug that they are developing? i also would like to participate in a study...
    23 year old clinical psychology grad student with lupus (SLE) and nephritis
    Medications: CellCept, Plaquenil, Prednisone, Lisinopril, Lipitor, OsCal+D

  8. #8
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    Question Hi Pam

    Hello how are you today . I have SLE for about 7 yrs . i also take planquenil ,Sulfate,Amitriptyline and paxil know . I need someone talk to for the reason i have question regarding this (SLE)

    1.i wonder if anyone skin is sensative to the point that you could not put a bra on ?
    2. Also can anyone explain why i will so tried all the time as older i'm getting ?

  9. #9
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    Default

    hi mag...

    welcome to the site. you will have no problems getting your questions answered here.

    yes, sometimes my skin hurts so bad that even brushing my hair causes pain. some mornings putting on a bra is not even an option.

    being tired.....oh, yawn, this is what gets me the most. i can not believe that i can only go a few hours before i have to lay down.

    lupus is a life-changing disease, and we have all had to alter our daily activities, including work....i no longer work full time.

    again, welcome, you will get lots of support here.
    Phyllis

    share a smile today

  10. #10
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    Default hi

    Just to say hello and welcome Bama & Mag.

    love
    Angel.xx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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