It sounds like we have some things in common. I homeschooled 8 of my children for 15 years. Now the youngest are in school...I burned out 5 years ago and put all in school. I have one in 7th grade, 2 in 10th grade and 1 who is a senior...(those are the only minors here) How old are your 2 youngest?
I was diagnosed with connective tissue disease for a while then told Lupus then connective tissue now Lupus.
Six months ago I was told it was mild( because of no organ involvement) 3 months ago my heart was attacked...an the beat goes on....
What are your symptoms? My rheumy has a real laid back attitude, almost too laid back at times. I have had to get to know him to understand where he is coming from. For instance, he couches his 'orders' like a request. He said last year, "you might want to start taking calcium and a multi vitamin" Well I didn't start those and when I went back to see him he wanted to take a blood test for my calcium and was visibly upset that I didn't do his orders...what orders? All in all, I still have confidence in him.
I hope that you find a good rheumotologist that you can trust.
Have a great day...