Thank you for sharing your story. You are right. People who don't suffer from lupus truly just don't get it. My friends try to be supportive as well, but I can tell they are still frustrated when I can't keep up with certain things.
I also understand your overwhelming fatigue and how horrible it feels to be so different from healthy people. It's very frustrating. However, I know I always try to make the best of my situation, and I'm sure you do too. I never take "feel good" days for granted anymore, and it's a lot easier to appreaciate life when things are going well than before the lupus decided to enter my life!
Definitely find a new doctor, because yours doesn't sound very good. I definitely think you should be able to find a treatment that keeps you flare-free for longer than a week or two. What medications are you currently taking?