Page 1 of 2 12 LastLast
Results 1 to 10 of 15

Thread: newbie to the forums and to the world of lupus...

  1. #1
    Join Date
    Mar 2009
    Location
    Lake Forest, CA
    Posts
    121
    Blog Entries
    11
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Talking newbie to the forums and to the world of lupus...

    Hello everyone,

    My name is Tasha and I'm 23. I was diagnosed with SLE about 3 months ago. I also have Class III Lupus Nephritis (which was diagnosed about a month ago after my renal biopsy). I'm currently taking 30mg of prednisone, 400mg of plaquenil, and 2,000mg of cellcept. I honestly feel fine most of the time aside from the horrible side effects of the prednisone that I've been experiencing: extreme water retention, trouble sleeping, and muscle weakness.

    I feel as though I have a pretty positive outlook on the whole thing. Everyone has challenges, and they make us who we are. Even though I can't do some of the things I was able to do even a year ago (like go on long hikes, for example), I still try to make the best of the situation.

    A little about me that has nothing to do with lupus... I'm currently a graduate student studying to be a marriage and family therapist in Southern California. I have a year and a half left of the program before I can become a registered intern in the state, during which time I'll be working hard to complete the necessary required hours for state licensure. After I graduate I plan on taking off for a bit before getting into the grind of life. I want to see the world

  2. #2
    Join Date
    Dec 2008
    Location
    UK
    Posts
    3,091
    Blog Entries
    59
    Thanks
    0
    Thanked 94 Times in 83 Posts

    Default hi

    Hi,

    Wow and well done you. How busy are you going to be when you pass fantastic!!

    My name is Angel. I will tell you about me another time.I am 39 live in the cold n rainy UK and i am so glad you found this site. People here are so full of knowledge about Lupus and will help where ever they can and are such lovely people.

    Have a look round the site.....oh n watch the arcade...a bit addictive but so much fun. If you need any help...you know we are all here.xxx

    Welcome!!!

    love
    Angel.xxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  3. #3
    Join Date
    Dec 2008
    Location
    Atlanta
    Posts
    3,115
    Blog Entries
    1
    Thanks
    27
    Thanked 80 Times in 69 Posts

    Default

    hi tasha,

    welcome to the group. I hope youf find comfort and confidence from your visits to the forum. Congrats on your degree....also, congrats on your commitment to "see the world".

    phyllis
    Phyllis

    share a smile today

  4. #4
    Join Date
    Oct 2008
    Location
    California
    Posts
    1,213
    Thanks
    280
    Thanked 208 Times in 162 Posts

    Default

    Welcome Tasha from another Cali-Girl! This is a fabulous group with so much wisdom and support to share.

  5. #5
    Join Date
    Sep 2007
    Location
    California
    Posts
    684
    Thanks
    0
    Thanked 14 Times in 13 Posts

    Default

    Welcome Tasha,

    I live in central/southern California and make the routine 2 hour trip over the Grapevine to my rheumy every three months.

    You have a very positive outlook!! That is great as it is half of the battle. There is another therapist that frequents the website as well; that may be why you are able to cope so well. I wish you the very best and keep us updated.

    Take care,

    Faith

  6. #6
    Join Date
    Mar 2009
    Location
    Lake Forest, CA
    Posts
    121
    Blog Entries
    11
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Thanks for the warm welcomes everyone!

    Faith, how long have you been diagnosed? Since I'm so new to this I decided, yesterday actually, to make an appointment with the rheumatology team over at UCLA just to see what they have to say. They're supposed to be the best! I figure it can't hurt, even though I do really like my rheumatologist who is just 10 mins from my house

  7. #7
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
    Join Date
    Nov 2001
    Location
    Victorville, California
    Posts
    7,781
    Blog Entries
    10
    Thanks
    1,636
    Thanked 943 Times in 597 Posts

    Red face Hello and Welcome Tasha

    I am Saysusie, the moderator/administrator of this site. I am so glad that you joined us and happy to hear that your Lupus is not causing you severe problems. The side effects of Prednisone can be a bit overwhelming, but it sounds as if you are dealing with that well.
    I am also in SoCal not far from LA County. I am in San Bernardino County

    Just wanted to add my welcome to the ones you've already received and to let you know that you've come to the right place to be amongst people who are understanding, caring and filled with useful information.

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

  8. #8
    Join Date
    Feb 2009
    Location
    essex, england
    Posts
    581
    Blog Entries
    1
    Thanks
    28
    Thanked 15 Times in 15 Posts

    Talking

    just a little hello tash i'm heidi!! its great to vertually meet you!!
    you have such a greart view on life something i try hard to do and sucessful most of the time!! good luck with you studies i am studing to be an accoutant
    at the momwnt! well enjoy, i got feeling your settle in well!!

  9. #9
    Join Date
    Mar 2009
    Location
    Lake Forest, CA
    Posts
    121
    Blog Entries
    11
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    i am actually in southern OC (Lake Forest to be exact). so not too far away!

    yeah, i feel very lucky to not have any severe problems right now. my biggest problem is the kidneys... but fortunately the inflammation has not caused any dysfunction or noticable side effects yet. still, i'm hoping the cellcept starts to kick in soon! my nephrologist said quite often those with class III nephritis never see it progress to later stages... so that's what i'm hoping for!
    23 year old clinical psychology grad student with lupus (SLE) and nephritis
    Medications: CellCept, Plaquenil, Prednisone, Lisinopril, Lipitor, OsCal+D

  10. #10
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
    Join Date
    Nov 2001
    Location
    Victorville, California
    Posts
    7,781
    Blog Entries
    10
    Thanks
    1,636
    Thanked 943 Times in 597 Posts

    Default

    Yes, you are rather close

    I, too, hope that your nephritis never escalates. The chances are pretty good that it won't since you are already on a treatment regimen.
    Continue to take care of yourself the way that you have been and you will, hopefully, not see escalation of any of your symptoms. That is what we all strive for and, of course, we all want to achieve remission.

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •